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Posted By Donna Wicks, March 18, 2017

Medical Advisor

Dr  Alan Hakim PGCert-TM MA FRCP

Dr Alan Hakim is a Consultant in Rheumatology and Acute Medicine.
Since becoming a Consultant in 2000 Dr Hakim has been active in clinical trials and epidemiology research in Rheumatology, having been an Arthritis Research Campaign Clinical Fellow, a UK Chief Investigator for several international clinical trials, Hon. Lecturer at UCL and at Guy’s & St Thomas’, and Hon. Senior Lecturer at Queen Mary, University of London.
As an experienced writer and educator Dr Hakim has over 100 publications including 5 books, and lectures and teaches internationally. He also has an extensive portfolio in hospital and commissioning senior management including lead service roles in Rheumatology, Osteoporosis, Emergency Medicine; Hospital Trust Executive roles in Strategy and Business Improvement; and, Board Non-executive roles as the Secondary Care Member to the CWHHE Commissioning Collaborative, Inner North West London.
Dr Hakim is the Chief Medical Advisor and a Trustee to the UK charity The Hypermobility Syndromes Association, a Medical Advisor to the UK charity Ehlers-Danlos Support UK, and a member of the Medical and Scientific Board of the international charity The Ehlers-Danlos Society.

Clinical practice (Private): Consultant Physician and Rheumatologist, The Hospital of St John and St Elizabeth’s, St John’s Wood,  London

Health Care Management (NHS) (non-clinic): Clinical Commissioning, CWHHE Collaborative, NW London


Deputy Chief Medical Advisor

Dr Philip Bull, FRCP

Dr Bull trained at St Thomas’ Hospital Medical School and then undertook senior specialty training in both Rheumatology and Acute Medicine at a Westminster and Charing Cross Hospitals. He worked as Consultant Rheumatologist at East Kent Hospitals University Foundation Trust based at the William Harvey Hospital from 1990 to 2014. During that time he developed a major interest in joint hypermobility and also held a senior management role as Clinical Director for medical services from 1994 to 2010.

Dr Bull has brings  his particular experience in hypermobility spectrum disorder and service development as Deputy Chief Medical Advisor to the HMSA. With regards to his clinical practice ( private) these include two rheumatology clinics , at the ‘One Hospital’ in Ashford  and  also ‘The Chaucer Hospital’ in Canterbury.

Dr Bull is also involved in medical education , running a rheumatology syllabus for East Kent Hospitals  medical students and junior doctors as well as local GP’s , health professionals and patient groups.

Dr Bull is the clinical lead  for the Kent Hypermobility Network and works on a voluntary basis for the HMSA and also, as a hospital governor for East Kent Hospitals. He has a particular interest in the Alexander Technique and Mindfulness.

In his spare time , Dr Bull plays bass guitar in an acoustic rock band.

Dr Bull joined the HMSA’s medical advisory board in November 2016.


Medical Advisors- Rheumatologists

Emeritus Professor of Rheumatology, University College Hospital, London





Dr Hana Kazkaz MB MSc MRCP

Consultant Rheumatologist, University College Hospital, London
Also at (Private): The Hospital of St John and St Elizabeth’s, St John’s Wood, London




 Dr. Jacqui Clinch FRCPCH

Clinical Director, Adolescent and Young Adult Chronic Pain Service, Royal National Hospital for Rheumatic Diseases, Bath
and Head Consultant in Paediatric Rheumatology, Bristol Royal Hospital for Children




Medical Advisors- Psychiatry


  Dr. Jessica Eccles MB ChB, Dip(French), MA, MSc, MRCPsych, PhD

Jessica Eccles trained in medicine at University Cambridge and University of Oxford, completing a BA in The History and Philosophy of Science, sparking a keen interest in philosophy of mind and brain-body interactions, and since graduation from medical school has pursued a combined academic clinical path at Brighton and Sussex Medical School. As an MRC Clinical Research Training Fellow she recently completed her PhD in the relationship between joint hypermobility, autonomic dysfunction and psychiatric symptoms and is now an NIHR Academic Clinical Lecturer. She holds and honorary clinical contracts with both Sussex Partnership NHS Foundation Trust and Brighton and Sussex Univeristy hispitals NHS Trust.

Dr Eccles joined the HMSA’s Medical Advisory Panel, in November 2016.



Medical Advisors- Neuro-gastroenterologist

Prof Qasim Aziz MBBS FRCP PhD

Wingate Institute, St Bartholomew’s, Barts Health NHS Trust, London

(Private) The Princess Grace Hospital, Nottingham Street, London



Medical Advisors- Genetics

Dr Brad Tinkle MD PhD

Associate Professor of Pediatrics, University of Cincinnati, OH, USA





Advisors- Physiotherapists

Dr Jane Simmonds MCSP MACP SFHEA,  DProf, MA, PGDip, BApp Sc (Physio), BPE

UCL Institute of Child Health, University College London.

Physiotherapy Lead:  Hypermobility Unit, Hospital of St John and St Elizabeth’s, St John’s Wood, London


 Originally from Western Australia, where she completed her physiotherapy education at Curtin University, Jane combines post-graduate physiotherapy education and research at University College London with clinical work a rehabilitation physiotherapist at the Hospital of St John and St Elizabeth in London where she specialises in working with young people with hypermobility related problems. Jane’s doctorate focussed on working with Physical Education Teachers to understand hypermobility related children in children. Jane is honoured to be a physiotherapy advisor to several patient charity groups including the HMSA, EDS UK, PoTS UK and the Ehlers Danlos Society and is passionate about improving the lives of people who suffer with hypermobility related problems through education and research. Jane regularly publishes in peer reviewed journals and books and writes for patient charities. She also regularly presents at national and international conferences. Jane is Chair of the International Physiotherapy Guidelines working group and is the senior author on the 2017 the evidence based hypermobile EDS guidelines paper. Jane is a committed educator and regularly leads and contributes to education within physiotherapy university programmes, CPD short courses in the UK and internationally on Hypermobility Spectrum Disorder and hypermobile Ehlers Danlos Syndrome.



Rosemary Keer MSc, MCSP, MACP
Chartered Physiotherapist, The Hospital of St John and St Elizabeth’s, St John’s Wood, London


Sue Maillard
Specialist Physiotherapist, Great Ormond Street Hospital, London


Madeleine Pook, Chartered Physiotherapist, AACP, Mindfulness MBSR,

As a teenager in 1980’s UK, I realised that my dreams of becoming a professional dancer were unrealistic. I was determined to pursue a career which might provide an answer as to why I could not keep up with my dancing peers. I graduated in 1998 from the University of Northumbria as a Chartered Physiotherapist and gained 10 years NHS experience in the North East of England. In 1995 I received a UK Government Charter Mark Award for excellence in the provision of public services. In 1997 I was seconded to North Durham and Teeside Education and Training Consortium as a Research and Development Officer for Teeside University.

In 2002, I returned to the South East to work as an Associate of a Private Practice providing MSK outpatient service and services to Bupa Hospital Fordcombe (now known as Spire Health care) and McIndoe Surgical Unit, East Grinstead. In 2003 I qualified as an AACP registered Acupuncture practitioner and in 2004 completed my Certificate in Pyscho Dynamic Counseling Skills at Wealden Psychology Institute.

In 2008 I returned to the NHS, to resume my passion for teaching, as a Brighton University Clinical Practice Educator. By 2012 I realised that my dreams of becoming a professional dancer might have been thwarted by my own hypermobility issues, which explained my special interest in patients with HSD’s and led to finding my 6 close family members already diagnosed with hEDS.

In 2014 I joined Kent Community Chronic Pain Service as a Specialist Physio in Chronic Pain, with a special interest in HSD’s. In 2015 I completed my Mindfulness MBSR training and attended the EDS UK annual conference in conjunction with RNOH Stanmore.  I joined the HMSA Kent Professional Hypermobility Masterclasses and we founded a Physiotherapy Hypermobility Special Interest Group, to improve local services within existing resources. In 2016 I attended the EDS Society’s International Symposium in New York, to assist in producing the 2017 international guidelines that will change the lives of people living with HSD’s.




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