“Accounts of HMS” is the exciting conclusion to a delicate and involved project developed with HMSA members over an extended period by photographer, illness Amy Fern Nuttall. You can get your copy here.
The HMSA are delighted to have supported this work and very much hope that it will be read by those people who need to better understand the impact these conditions can have on the people who have them, tadalafil their families and friends.
A percentage of proceeds from each sale will be donated to The HMSA.
“Accounts of HMSA” includes interviews and portraits of participants, pharmacy in addition to:
Understandable explanations of each condition, their causes and their symptoms.
A note from HMSA.
A breakdown of the Brighton Criteria and how it compares to the Beighton Scale (including handy illustrations).
Explorations of all the findings discovered by conducting this research
And much more content designed to clarify your understanding of Hypermobility Syndromes, and their effects.
More from the author below…
“Accounts of HMS was produced with the support of HMSA and the contributions of over 100 participants. A sample of volunteers were photographed and interviewed across the UK, with the aim of showing the human face of HMS, which is so often consigned to text about genetics and diagnostic techniques. Instead, Accounts of HMS invites the reader to consider what it is like to live with a condition, which is commonly invisible to the naked eye. Many participants recounted discrimination due to the inconspicuous nature of their syndrome, describing incidents in which their hidden condition had led to disputes on public transportation, disbelief in the workplace, and even kepticism with doctors unfamiliar with the syndromes. “Because you can’t see it, people don’t know it’s there,” explained one participant. “Because you can’t see it, people don’t understand it, so you don’t get the support,” explained another.
A reoccurring topic throughout these discussions was the difficulty of adapting their jobs to accommodate flare-ups, chronic pain, injuries and fatigue. Various participants had to undergo a complete career change due to the effects of HMS on their work life, with many opting to work part-time; using what spare time they had to recover from a working day, or even using holiday pay and overdrafts to pay for sick days off from work.
By communicating with so many people diagnosed with Hypermobility Syndromes, and through personal research, Accounts of HMS covers a broad range of findings, from the impact on social lives, to the reluctance of male participants to discuss their condition. What became most apparent through the development of this book was how environmental and psychological factors affect living with the syndromes just as much as the biological and physical aspects.
Personally, I found the process of hearing from others and sharing experiences of living with HMS essential to my understanding of the condition, and thus provide relief that others feel the same way and share the same stories. In this context, I hope that this book will provide others with the same knowledge and support, which is fundamental to the management of Hypermobility Syndromes, as well as covering the day-to-day aspects and effects on lifestyle, which is sorely lacking in HMS literature.”