On a new webpage in our “Help and Advice” section, Professor Stephen Porter, Institute Director and Professor of Oral Medicine, UCL Eastman Dental Institute, London, writes on aspects of dental disease and dental care in EDS.
To read this article click here .
A Hakim, Chief Medical Officer and Trustee
We have updated our website article on pregnancy and hypermobility to reflect the findings of two very recent publications that are important observations and of interest to patients, doctors and therapists.
Sunderlin et al. identified 314 cases of pregnancy in women with either JHS or EDS through the Swedish Patient Register and Medical Birth Register. The cases were compared with 1,247,864 controls (pregnant women without JHS/EDS). The risk of complications in JHS/EDS was assessed after adjusting for maternal age, smoking, number of pregnancies, and year of birth. JHS/EDS was not associated with any increased risk of preterm birth, the need for a caesarean section, stillbirth, complications in the infant at delivery (a low Apgar score), or the infant being small or large for gestational age. At the same time similar observations have been published by Hugon-Rodin et al. This is reassuring. However there are other concerns that might arise, including musculoskeletal complications. To read our article on pregnancy and hypermobility in full click HERE.
Hugon-Rodin and colleagues also reported a high frequency of gynaecological complaints in JHS/EDS: menorrhagia (abnormally heavy bleeding) (76 %), dysmenorrhea (excessive pain during bleeding) (72 %) and dyspareunia (pain during sexual intercourse) (43 %); but endometriosis was not highly prevalent in this population. The researchers noted a subgroup of women were sensitive to hormonal fluctuations with more severe symptoms occurring during puberty, prior to menstruation, and during the postpartum (after childbirth) period. Many will likely not be surprised by these findings – but the paper is important as it highlights the reality that these are common concerns. To read more about hormones click HERE.
Hugon-Rodin J, Lebègue G, Becourt S, Hamonet C, Gompel A. Gynecologic symptoms and the influence on reproductive life in 386 women with hypermobility type ehlers-danlos syndrome: a cohort study. Orphanet J Rare Dis. 2016 Sep 13;11(1):124. doi: 10.1186/s13023-016-0511-2.
Sundelin HE, Stephasson O, Johansson K, Ludvigsson JF. Pregnancy outcome in Joint Hypermobility Syndrome and Ehlers Danlos Syndrome. Acta Obstet Gynecol Scand. 2016 Oct 14. doi: 10.1111/aogs.13043. [Epub ahead of print]
Dr Alan Hakim, Chief Medical Advisor and Trustee, HMSA. October 2016
The IFOMPT conference is a prestigious musculo skeletal physical therapy international conference which is held every four years. This year Rosemary Keer, malady Verity Pacey and Jane Simmonds were invited to host a focused symposium on advancing practice in hypermobility. The symposium attracted more than 200 IFOMPT attendees. Rosemary, physician Verity and Jane presented the current diagnostic criteria for Ehlers-Danlos syndrome – hypermobile type, buy cialis and the approaches to assessment and management across all ages.
The key take home messages to attendees included early recognition and the provision of holistic care.
Congratulations are sent from the HMSA to all three of them for being invited to speak. Our thanks go to them not least for their tireless work in supporting patients with hypermobility disorders, and their support of the HMSA, but also for the extensive work they do to support and teach other health care professionals. The HMSA Office. July 2016.
The HMSA Journal is in its 3rd year, order and goes from strength to strength.
We publish a variety of different types of articles, some of which we commission, and a number of which are submitted for consideration by our members and readers.
In order to assist the editorial team in both reviewing a submitted article and then preparing it for publication, the HMSA has agreed a standard set of guidelines for authors to follow.
These guidelines are published in the Journal and are now also available on the website by clicking here.
If you have something you would like to be considered for publication in the Journal we very much look forward to hearing from you.
Dr Alan J Hakim, Trustee and Chief Medical Advisor
If you join or renew by the 9th October only then you will receive a free pen and HMSA pin badge worth £4.25. This applies to any full HMSA membership. Signing up or renewing through our shop is so simple, diagnosis just visit www.hypermobilityshop.org, nurse choose the membership button, and from the drop down box choose the membership option you require.
Alternatively, you can email firstname.lastname@example.org with your details and Abi will be more than happy to take a debit or credit card payment from you.
Please bear in mind that nobody under 16 years of age can have a single adult membership due to our safeguarding policy.
This offer will end on the 9th October 2015.
Please also note that this offer is separate to the Journal offer. As many of you may be aware the next edition of the HMSA journal is due out in October. To receive this you must be a current member of the HMSA and either have joined or renewed a lapsed membership by the 1st October.