Latest News

Dental Implications in EDS

Posted By Alan Hakim, January 3, 2017

On a new webpage in our “Help and Advice” section, Professor Stephen Porter, Institute Director and Professor of Oral Medicine, UCL Eastman Dental Institute, London, writes on aspects of dental disease and dental care in EDS.

To read this article click here .

A Hakim, Chief Medical Officer and Trustee

Hormones, Pregnancy, and JHS/EDS-hypermobility type

Posted By Alan Hakim, October 30, 2016

We have updated our website article on pregnancy and hypermobility to reflect the findings of two very recent publications that are important observations and of interest to patients, doctors and therapists.

In summary:

Sunderlin et al. identified 314 cases of pregnancy in women with either JHS or EDS through the Swedish Patient Register and Medical Birth Register. The cases were compared with 1,247,864 controls (pregnant women without JHS/EDS). The risk of complications in JHS/EDS was assessed after adjusting for maternal age, smoking, number of pregnancies, and year of birth. JHS/EDS was not associated with any increased risk of preterm birth, the need for a caesarean section, stillbirth, complications in the infant at delivery (a low Apgar score), or the infant being small or large for gestational age. At the same time similar observations have been published by Hugon-Rodin et al. This is reassuring. However there are other concerns that might arise, including musculoskeletal complications. To read our article on pregnancy and hypermobility in full click HERE.

Hugon-Rodin and colleagues also reported a high frequency of gynaecological complaints in JHS/EDS: menorrhagia (abnormally heavy bleeding) (76 %), dysmenorrhea (excessive pain during bleeding) (72 %) and dyspareunia (pain during sexual intercourse) (43 %); but endometriosis was not highly prevalent in this population. The researchers noted a subgroup of women were sensitive to hormonal fluctuations with more severe symptoms occurring during puberty, prior to menstruation, and during the postpartum (after childbirth) period. Many will likely not be surprised by these findings – but the paper is important as it highlights the reality that these are common concerns. To read more about hormones click HERE.

References:

Hugon-Rodin J, Lebègue G, Becourt S, Hamonet C, Gompel A. Gynecologic symptoms and the influence on reproductive life in 386 women with hypermobility type ehlers-danlos syndrome: a cohort study. Orphanet J Rare Dis. 2016 Sep 13;11(1):124. doi: 10.1186/s13023-016-0511-2.

Sundelin HE, Stephasson O, Johansson K, Ludvigsson JF. Pregnancy outcome in Joint Hypermobility Syndrome and Ehlers Danlos Syndrome. Acta Obstet Gynecol Scand. 2016 Oct 14. doi: 10.1111/aogs.13043. [Epub ahead of print]

Dr Alan Hakim, Chief Medical Advisor and Trustee, HMSA. October 2016

 

High Profile Therapists Speak at Major International Conference

Posted By Alan Hakim, July 10, 2016

IFOMPT Glasgow 1The IFOMPT conference is a prestigious musculo skeletal physical therapy international conference which is held every four years. This year Rosemary Keer, malady Verity Pacey and Jane Simmonds were invited to host a focused symposium on advancing practice in hypermobility. The symposium attracted more than 200 IFOMPT attendees. Rosemary, physician Verity and Jane presented the current diagnostic criteria for Ehlers-Danlos syndrome – hypermobile type, buy cialis   and the approaches to assessment and management across all ages.

IFOMPT Glasgow 4The key take home messages to attendees included early recognition and the provision of holistic care.

IFOMPT Glasgow 2Congratulations are sent from the HMSA to all three of them for being invited to speak. Our thanks go to them not least for their tireless work in supporting patients with hypermobility disorders, and their support of the HMSA, but also for the extensive work they do to support and teach other health care professionals. The HMSA Office. July 2016.IFOMPT Glasgow 3

 

 

HMSA Journal Article Submissions

Posted By Alan Hakim, January 15, 2016

The HMSA Journal is in its 3rd year, order and goes from strength to strength.

http://hypermobility.org/wp-content/uploads/2014/04/HMSA-JOURNAL-APRIL-2014-page1.jpgWe publish a variety of different types of articles, some of which we commission, and a number of which are submitted for consideration by our members and readers.

In order to assist the editorial team in both reviewing a submitted article and then preparing it for publication, the HMSA has agreed a standard set of guidelines for authors to follow.

These guidelines are published in the Journal and are now also available on the website by clicking here.

If you have something you would like to be considered for publication in the Journal we very much look forward to hearing from you.

Dr Alan J Hakim, Trustee and Chief Medical Advisor

Membership Offer Launch

Posted By Alan Hakim, October 2, 2015

HMSA membership offer

If you join or renew by the 9th October only then you will receive a free pen and HMSA pin badge worth £4.25. This applies to any full HMSA membership. Signing up or renewing through our shop is so simple, diagnosis just visit www.hypermobilityshop.org, nurse choose the membership button, and from the drop down box choose the membership option you require.

Alternatively, you can email sales@hypermobility.org with your details and Abi will be more than happy to take a debit or credit card payment from you.

Please bear in mind that nobody under 16 years of age can have a single adult membership due to our safeguarding policy.

This offer will end on the 9th October 2015.

Please also note that this offer is separate to the Journal offer. As many of you may be aware the next edition of the HMSA journal is due out in October. To receive this you must be a current member of the HMSA and either have joined or renewed a lapsed membership by the 1st October.


Disclaimer
The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.