Latest News

Membership Offer Launch

Posted By Alan Hakim, October 2, 2015

HMSA membership offer

If you join or renew by the 9th October only then you will receive a free pen and HMSA pin badge worth £4.25. This applies to any full HMSA membership. Signing up or renewing through our shop is so simple, diagnosis just visit, nurse choose the membership button, and from the drop down box choose the membership option you require.

Alternatively, you can email with your details and Abi will be more than happy to take a debit or credit card payment from you.

Please bear in mind that nobody under 16 years of age can have a single adult membership due to our safeguarding policy.

This offer will end on the 9th October 2015.

Please also note that this offer is separate to the Journal offer. As many of you may be aware the next edition of the HMSA journal is due out in October. To receive this you must be a current member of the HMSA and either have joined or renewed a lapsed membership by the 1st October.

Health Professional Course in Joint Hypermobility Syndrome, NCORE, Derby Hospitals NHS Foundation Trust, 29th January 2016

Posted By Alan Hakim, September 26, 2015

On the 29th Jan ’16 The National Centre of Rehabilitation Education (NCORE), Derby Hospitals NHS Foundation Trust is hosting a 1-day course on the assessment and management of Joint Hypermobility Syndrome / Ehlers-Danlos Syndrome – Hypermobility Type.

The course, offering 6.25 hours CPD and facilitated by Dr Jane Simmonds*, will be suitable for physiotherapists, occupational therapists, podiatrists, dieticians and psychologists; will cover the spectrum of those affected, from children to adults, athletes, to the complex and vulnerable; and, will provide opportunity to discuss and reflect upon clinical practice and apply evidence-based approaches.

For more information click on this link,, then click on ‘events’ on the webpage, scroll down to the 29th January, and click on the event. The local contact in Derby is Anne Hardy, Clinical Specialist in Physiotherapy, Royal Derby Hospital on 01332 787050 or at


* Dr Jane Simmonds MCSP MMACP FHEA is a Clinical Specialist Physiotherapist, Hypermobility Unit, Hospital of St John and St Elizabeth, London; Senior Teaching Fellow University College London; and, Medical advisor to HMSA and EDS Support UK.





Please Take Part In Our Local Groups Survey – Online Access Now Closed

Posted By Alan Hakim, May 1, 2015

Thank you for all the responses. The online access is now closed as we have met our maximum survey number. Members who have received their Spring 2015 Journal will also find a paper version they can complete and return.

HMSA Office, drug May 2015 


We greatly value member feedback and we will always endeavour to meet the needs of our membership in the best way possible.

Please could you take a minute to fill in this online survey Click Here. Please do this in the one sitting, avoiding repeatedly restarting as this uses up the limited free number of entries we are allowed.

If you have no local group and would like to start one, or if you would like to join the team running your existing local group, then please email for more details. If you have any other comments or feedback regarding local group meetings, then please email the above address.

The HMSA Office, April 2015


Participate in a Study of Proprioception (position awareness) in Women with JHS – At Glasgow Caledonian University

Posted By Alan Hakim, March 29, 2015

Prorioception StudyThe HMSA is pleased to endorse a study being undertaken by Nicole Greidanus and Cassandra Russell, second year MSc. Physiotherapy students at Glasgow Caledonian University.

They are studying aspects of proprioception, which is the body’s system for determining its movement and position. The aim is to determine if multiple joints in a person’s body have a similar ability to detect movement and position in both healthy young adults and young adults with Joint Hypermobility Syndrome.

To take part you will need to be able to attend the Human Performance Laboratory at Glasgow Caledonian University. In taking part you will be asked to complete a brief questionnaire on physical activity and joint mobility, the researchers will measure your height and weight, and then undertake proprioception tests. To assess your proprioception, the researchers will use a machine called “Biodex system 4 pro” shown in the image above.

To find out more about the study and to get involved contact the research team by:

Telephone: 01413318824 or

Email: Nicole Greidanus-  or

Cassandra Russell-

The HMSA Office. March 29th 2015


Fatigue and Health-related Quality of Life in EDS – A Patient Survey – CLOSED

Posted By Alan Hakim, March 24, 2015

This study has closed. A Huge Thank You to everyone – the researchers received over 500 surveys from you!

The HMSA is pleased to endorse a research project being undertaken by Elaine Byrne, health Physiotherapist, here as part of a Masters Degree at the University of Hertfordshire. Take a look at the simple check list in the poster below, and if you meet the criteria, as many Members will, why not take the survey by clicking on the weblink provided.

Elaine Byrne Research


The study is being conducted by Elaine Byrne B.Sc MCSP MACP a qualified Chartered Physiotherapist who is undertaking this project as part of a Master’s degree at the University of Hertfordshire.

If you have any queries please contact: Project supervisor: Dionne Ryder MSc. MCSP MMACP Senior Lecturer:

Ethical approval granted by: University of Hertfordshire – School of Health & Human Sciences. APPROVAL NO: aHSK/PG/UH/00335


The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.