The HMSA works hard raising awareness of hypermobility syndromes among the general public, in our schools and workplaces, at conferences and along with our partner organisations help to refine the services that our patient community need to support them in managing their condition. Our online support resources and local groups are well known and our patient and family events incredibly popular, but we aim to support and educate the patient community and the health professionals working with them.
Dr Jane Simmonds will be hosting our next professionals only HMSA Physio Masterclass event on Friday the 31st March at The William Harvey Hospital, Postgrad Centre, Ashford, Kent, TN24 0LZ
It’s an excellent opportunity to learn more about effectively treating people with hypermobility syndromes, not to mention that our events are almost always a lot of fun too!
This event is strictly for health care professionals, book your place now in our webshop,
If you haven#t already, you may wish to make use of our Professional Membership scheme to keep up with the latest developments in the field and receive priority booking on future events.
HMSA Youth Patron, Hannah Ensor, is to become the HMSA’s Hypermobility Spectrum Disorder* Ambassador.
Hannah has worked closely with the Hypermobility Syndromes Association for a number of years and assists with raising the profile and awareness of Hypermobility Spectrum Disorder; the new name for hypermobility syndromes which are not covered by EDS, OI, Marfan, Stickler and PXE.
Hannah takes part in the HMSA’s self-management programmes and participates in our work with professional members as the ‘patient voice’. She is also well known for promoting the rights and needs of people with disabilities and is spending a second year as one of Britain’s 100 most influential people with a disability.
Hannah regularly fundraises for the charity and has a hugely successful business which has enjoyed global recognition, called Stickman Communications. You can view Hannah’s work on her website, stickmancommunications.co.uk
“I’m honoured to have been offered this exciting opportunity and am looking forward to helping further raise the profile of hypermobility spectrum disorders* – particularly highlighting the fact that the whole spectrum of conditions can range from mild to severe depending on how each individual is affected.
Over the past few years, as a Patron of the HMSA, I have seen an increased number of people taking hypermobility syndromes of all types more seriously -and I’m excited by the prospect of being able to help build further on this important work, among the general public as well as in the medical and patient communities.”
*Please see our HMSA statement of position on the 2017 International Criteria for Ehlers-Danlos syndromes which explains how our use of terminology has been, is and will be changing.
This document was prepared on Monday 20th February following requests from our members. It aims to address issues, and ease anxieties raised by the early and partial release of documents from the International Consortium and the FAQ that followed.
When the full nosology documents are released on March 15th a clearer picture will be available to everyone, in the meantime we’ve provided as much information and explanation as we’re able to. The HMSA stands for and with ALL people with hypermobility syndromes and will continue to do so.
Please note, for a printer friendly version, click the green ‘printer friendly’ icon, bottom left.
Click here for a pdf version, many thanks to our visually impaired members for their patience while our volunteer team made the necessary conversions