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Posted By HMSA Social Media Coordinator, March 13, 2016

Meet Sarah, our HMSA Blogger

Nice to meet you all, I’m Sarah, I’m the Northampton Group Leader and part of the social media team for the HMSA. I’m originally from Liverpool and ran a group there but moved to Northants last year. I’ve been volunteering for the HMSA for almost two years and I really enjoy it; I’m excited to start this new chapter and launch this blog.

The full blog can be found here:





#HMSAware blog post


The team are working hard to inform the public of various hypermobility syndromes; Marfan syndrome, joint hypermobility syndrome, Ehlers-Danlos syndrome, pseudoxanthoma elasticum, osteogenesis imperfecta and Stickler syndrome. We are myth busting and explaining the basics of bendiness; all can be found on our Facebook and Twitter.

Full blog post can be found here:





I’m sure you’ve heard this word hundreds, if not thousands of times before, and trust me, I’m sick of it too. But, once you realise and understand how helpful it is to pace yourself, you’ll find you do things a lot differently, and not suffer so much.

I’ll let you in on a little secret, we’re all bad at pacing (at the beginning), it takes time, effort and a lot practice to get to grips with it. I’m no master, I still find myself trying to push my limits on the odd occasion but there’s a voice in the back of my head that tells me I need to pace. I need to remember how I’ll suffer. I need to stop; stretch; do another activity.

Pain has so many adverse effects on the sufferer; lifestyle changes, mood changes, body, relationships – there’s a lot to deal with when living with chronic pain. The common denominator with chronic pain sufferers is that they tend to push themselves, they do too much, they don’t stop until they’re in so much pain they can no longer move, and then pay for it for days if not weeks afterwards. However, once the pain eases, the sufferer does the same thing, there’s no learning from the pattern; the vicious cycle of over-activity and intense pain goes on and on and on….

Sarah’s full blog post can be found here:




HMSAEAMEDS Awareness Month

May is EDS Awareness Month.

I’ll be flying the zebra-striped flag and telling anyone that will listen about EDS – no change from any other month, but since we have these 31 days dedicated to EDS, it’s best to use them wisely, to shout it from the rooftops etc.

EDS Awareness month is to not only raise awareness but to educate, so please do try and get involved. Even if it’s sharing something from the HMSA Facebook page or writing a tweet using the hashtags‪#‎EDSAwarenessMonth‬ ‪#‎MayWeSay‬ – the more it’s talked about, the more awareness is raised.

Keep a look out on the HMSA Facebook and Twitter

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