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cEDS Awareness

Posted By HMSA Social Media Coordinator, May 7, 2017

It’s Ehlers-Danlos Awareness Month!

Here’s a shout out to all those living with classical Ehlers-Danlos syndrome (cEDS)!

It is a connective tissue disorder caused by known genes and is characterised by:
– very soft and stretchy skin which splits, tears and bruises very easily, and doesn’t heal well, often leaving wide papery scars.
– Internal organs which herniate or prolapse
– joint hypermobility in all joints (with the associated dislocations, pain and fatigue)

The joint related issues can mirror the issues found in hEDS and are treated the same way, although anything that impacts the skin may need a slightly adapted approach – for example extra soft linings for splints and trying to making sure that exercises don’t split or tear the skin.

It’s important to note that slightly fragile, stretchy skin and abdominal hernias are common in hEDS, but these issues are much more marked in cEDS.

#EDSAwarenessMonth


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