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It may be Ehlers-Danlos awareness month, but don’t worry, we haven’t forgotten everyone who has other hypermobility syndromes!

Posted By HMSA Social Media Coordinator, May 4, 2017

By raising awareness of EDS in the right way, we can also benefit people with HSD (previously called JHS or BJHS), Marfan syndrome, stickler syndrome, pseudoxanthoma elasticum, and others.

For example, did you know that recommended management of hypermobility is exactly the same in hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders and many of the other hypermobility syndromes too? – treating the symptoms, using pacing and exercise to help manage pain and fatigue, needing to find the exercise that works for the individual so they can build muscle without injury, careful and considered use of joint supports and mobility aids where appropriate, and surgery as a last resort.

The associated conditions that professionals are advised to look out for (like MCAS, POTS and gastroparesis) are also the same for both hEDS and HSD.


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