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European Patient Forum – report on ‘ Added Value of Patient Organisations’

Posted By Donna Wicks, December 8, 2017
Report on the Added Value of Patient Organisations
European Patients Forum has publised a report to highlight the value of patient organisations as legitimate stakeholders in civil dialogue in health-related policies.The objective of the report is to emphasise the contribution of patient organisations in representing and voicing the situation of a specific population that would otherwise not be represented. The main activities of patient organisations are set out in four different areas: policy, capacity building
and education, peer support and research & development (both health and pharmaceutical).

What fantastic timing for the Hypermobility Syndromes Association? We have just launched our Giving GPs the Tools campaign, and are in the process of developing an eight week self-management programme for people with a hypermobility related disorder!

The report makes interesting reading.
Help us to help you by supporting our campaign. You can contribute by sharing our posts to raise awareness, tell us your story by emailing it to or donate to the campaign
You can do this by Just Text to HMSA13 to 70070 followed by 5 or 10 or donate to the campaign page on

Don’t forget there is 10% selected items in the HMSA shop Just use SALE-10% at the checkout.


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