Latest News

Events

Posted By Alan Hakim, June 18, 2013

Sep
30
Sat
2017
EDS Support UK & HMSA Management and Wellbeing Conference @ Chesford Grange
Sep 30 – Oct 1 all-day

DESCRIPTION

Tickets can now be purchsed for this event by non members.

We are proud to announce that The Ehlers-Danlos Support UK and Hypermobility Syndromes Association will be jointly hosting the Management and Wellbeing Conferece on Saturday 30th September and Sunday 1st October at Chesford Grange, Warwick. This is the first time both charities have combined their approach towards patient conferences and we hope it will enable us to provide people the best possible content.

The aim of the conference is to provide members with practical health and well-being advice. The programme is being developed and will include a broad range of speakers covering a variety of health matters common to people with connective tissue disorders. A copy of the programme can be downloaded here but please note this is subject to change.

We are running breakout sessions throughout the two days which will focus on practical management advice. You will be able to sign up to these sessions on the day but please note each session is limited to a number of attendees. The content of these sessions can be viewed on the programme which can be downloaded here.

Families will be most welcome at the event and entertainment will be provided for children (minimum age of 4 years old), so parents can focus on the conference content.

PLEASE READ THESE IMPORTANT POINTS BEFORE BOOKING TICKETS

EDS UK and HMSA have spent time trying to find a venue which offers reasonable accessibility, has the conference facilities required to organise such an event and has a capacity near to the amout of tickets that we anticipate will be sold. Please read the notes below so you can plan your stay accordingly:

1. The conference space is accessible for wheelchairs and mobility aids and the conefrence is being held on a single floor so there are no steps.

2. You will need to use lifts to access the bedrooms but no steps. All rooms which are not classed as accessible have a minimum door width of 28″. All rooms classed as accessible have a minimum door width 30.5″.

3. All bedrooms (except one) have a bath/shower. This means you will need to step over the bath edge to access the shower. Please click here to see a picture of a typical bath/shower arrangement in the hotel. There are a few rooms which are classed as accessible by the hotel. Before booking this ticket type please read the description as we would not class all these rooms as fully accessible.

4. If you require a bedroom on either the Friday or Sunday night please book this directly with the hotel after you have secured your tickets with us. Please note the hotel will not necessarily know about your booking with is when you call as rooming lists will only be sent to the hotel a few weeks before the event. Whilst every effort will be made to avoid it, it is very likley you will be in a different bedroom for the Satutday night due to rooming requirements of each individual conference attendee.

5. In recent years we have been able offer some events free of charge to members, due to generous donations and grants we have secured. Unfortunately we have not been able to secure funds of that type for this event. We completely understand that the cost of attending these events can be expensive and will no doubt be beyond some members. For this reason, we hope to film the presentations and make them available to all members shortly after the event. We would like to reassure you that neither charity is likely to ‘profit’ from this event and in fact it is most likely that additional funds will need to be secured by both charities to ensure the success of the event.

Oct
15
Sun
2017
HMSA Autumn Craft and Holistic Fayre @ Novotel Nottingham Derby
Oct 15 @ 10:00 am – 5:00 pm
Oct
21
Sat
2017
Nottingham local group meeting
Oct 21 @ 2:00 pm – 4:00 pm

Nottingham local group run by trained volunteers. Wendy Turner is the point of contact for this group.

This group is for people affected by any of the hypermobility syndromes, for support, advice and to meet others socially 🙂

 

Oct
22
Sun
2017
Hampshire local group meeting
Oct 22 @ 2:00 pm – 4:00 pm

Nottingham local group run by trained volunteers. Julie Hyans is the point of contact for this group.

This group is for people affected by any of the hypermobility syndromes, for support, advice and to meet others socially 🙂

 

Oct
28
Sat
2017
Gateshead local group meeting
Oct 28 @ 10:00 am – 12:00 pm

A local HMSA group for those by hypermobility syndromes. Please feel free to ask questions, join in any discussions, and we would love to see you at meetings.


Disclaimer
The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.
http://keonesoftware.com/guides/com-surrogate/ . http://www.kemitart.com/