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Exciting News! HMSA and EDS UK Residential Conference

Posted By Donna Wicks, May 12, 2017

The HMSA and EDS UK are proud to announce that we are to run a joint residential conference, based on ‘Management and Wellbeing’ later this year.

The dates are 30th September to 1st October 2017 and the venue is Chesford Grange, Warwick.



This will be the largest conference for this population of people in Europe, with space for 350 delegates and we are looking forward to meeting you all there. For many years the members of the HMSA and EDS UK have wanted the charities to work more closely together and we are happy to be able to show you some of the results of our work at this conference.

The conference will focus on how to live well with the conditions that both charities support.

The event is suitable for ALL HMSA members, including those who have Marfan syndrome, Osteogenesis Imperfecta, Stickler syndrome etc. It is an wonderful opportunity for people with the above conditions, and those with HSD (JHS) and EDS, to meet with each other and help shape the future work of the charities.

Of course, we will be bringing globally recognised experts along to share their knowledge and skills. Additionally, we are also running a childrens and teens programme. The programme details are still being worked on and we will of course update you as soon as we can.

We are very excited here at the HMSA, and we know that spaces will sell quickly, so please do join us and visit the web page as soon as possible to register your interest.

Please register your interest to keep updated on the conference and be the first to hear when tickets are released: 

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