Painful Skin

[WinonaLemonade]

did you edit your post i had a look at that aswell, thanks

[Georgie]

Ooo I haven't been in here for ages but thought I'd check out if anyone else had 'sore skin' and if it's related to hypermobility. It seems that I'm not the only one then. The skin on my back, neck and thighs feels so tight and sore it's driving me mad. It feels like it's tearing when ever I move, but it's not at all dry to touch. I remember having this as a kid and my mum saying I was growing too fast!lol! xxx

[l00pyp0u]

sore skin in patches, periodically, actually mine feels like a bad case of sunburn, which i know it isnt, as its the middle of winter, and i havent been out of trousers since march last year

[goddess]

Hi,i dont know if this is the right place to post this.But when i was in hospital last week,and since ive returned home,when i lie half on my side and half on my back (as i cant lie flat on my back due to the surgery ive had,my hip bones and the bone at the back or my hip,top of my bum area is VERY painful and sore.Its as though when i sleep,all my weight goes onto these bones.In hospital,as i couldnt move i found my legs were in agony,ie the side of my knee,the bone there,and despite severe abdominal pains (not due to hms),i had to move to the other side! I wondered if these problems were common to people with hms and were part of it? I dont have a lot of flesh covering my hip bones although im nowhere near skinny.

modnote: merged with existing thread on skin-related pain

[Presto]

I only have one painful skin area that comes and goes. Its only on one side of my face. The same side that has the jaw issues. It's highly sensitive to touch, feels bruised, and has distinctly painful lines like a bunch of fingers clutching that side originating above my ear.
It's still amazing to me to see how so many of my stupid little problems could be explained by HMS.

[barkingmad]

Goddess, it sounds more like you have problems with lying on your joints not the skin.

However, painful skin is common in people who live with a chronic pain disorder, which HMS has as part of the diagnostic criteria, although it isnt uncommon to have other pain disorder diagnoses.

This is because the spinal cord receives our pain messages (ie your stub your toes and a pain message goes up through your spinal cord to your brain which registers it as pain and sends the signal back down through the spinal cord saying 'yep that hurts!')...in people with chronic pain the message first received from the toe to the spinal cord gets amplified in the spinal cord, so by the time the message hits the brain its interpreted as ' OMG my whole foot has been cut off, this is excrutiating and its not going to stop!!!'...at the same time the senses messages, hearing, touch, sight, etc are nearby to the pain messages in the spinal cord...and the amplified pain messages manage to affect the senses messgae so we experience touch (or sight etc) as being extremely painful too.

Hope that helps, having a bit of a foggy day but thought you might feel better understanding why touch to our skin can be a part of our chronic pain experiences.

[goddess]

Thanks barking,but i think i have BOTH things! yes.it does make sense.

[goddess]

hi,does anyone have any tips on how to deal with painful joints due to pressure when sleeping? since ive come out of hospital i can only lie comfortablyish on one side,so my hip bone and the side of the bone at the top of my leg,plus my upper arm bones and right knee bones are killing me! i lie with cushions supporting them but it doesnt seem to help!

[l00pyp0u]

sorry Godess cant help there,

thank god you Posted BM,
I actually thought I was going mad have had severley itchy feet in past especially when trying to put makeup on to go out, (the crazy shuffle of feet on carpet whilst trying not to stab myself in the eye with the mascara) and no one listened, then the walking on bruises, which is Flat foot related, but I am not allowed anywhere podiatory yet, yntil the upper torso is stabilised. and having had freezing feet from childhood, now my feet are warm to touch, but to me feel as though I am standing on very hot sand, unbearable, especially at night when I have to somehow prop the offending articles on a freezing radiator to get some relief not easy to perform with out falling out of bed
still getting some patches of painful skin, but will admit it has settled quite a bit with the FM medications now I come to think of it,
Just the burning feet left now any suggestions, as honestly its like standing barefoot on a burning beach, and you try going to sleep when your feet are burning, GP says its just the way my nerves work now, but thats no help to me and I really dont like falling out of bed, and I cant move the bed anycloser to the radiator, as then I wouldnt be able to get in it or out of it, or I'd end up wedged between it and the radiator but not on the floor
can you tell this ones getting to me?

LOU