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Books on Hypermobility

Posted By Donna Wicks, October 1, 2012

The HMSA has publishes a range of booklets and a twice yearly Journal available from our shop (Click Here).

The HMSA endorses the book ‘Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder’ written by Redcliff-House Publications.

Whether you are newly diagnosed, or a patient or healthcare professional this ground breaking book, reviewed by leading experts and reflecting the most up to date knowledge from the EDS International Classification 2017, brings together all the information you most want to know about the newly classified ‘hypermobile Ehlers-Danlos syndrome’ and ‘hypermobility spectrum disorder’ (previously known as ‘Ehlers-Danlos hypermobility type’ and ‘joint hypermobility syndrome’, respectively).

The author has not only managed to compile clear and concise answers to frequently asked questions, such as ‘How do these conditions overlap?’ and ‘Why are people affected so differently?’, she has provided detailed descriptions of symptoms and associated co-morbidities, and has provided comprehensive, accessible, evidence-based information relating to diagnosis and management. Exercise, physiotherapy, surgery and the psychological effects of the disorder are discussed, as well as what to expect during clinical assessment, and much, much more.

From postural orthostatic tachycardia syndrome to mast cell activation syndrome, and from clinical assessment to self-management – if you ever wished that you could find all of the information you need, together, in one place…Look no further!

Foreword for this book

Our understanding of the complexities of hypermobile Ehlers-Danlos syndrome, and hypermobility spectrum disorder (previously known as Ehlers-Danlos syndrome hypermobile type, and joint hypermobility syndrome) has advanced significantly over the last 10 years, of that there is no doubt. Yet there is a lack of good quality publications covering the new information we have. Frequently, patients are expected to navigate a complex medical system and then manage more and more of their often complex care at home, so it is with great pleasure that I have read this book, which provides answers to the most frequently asked questions; describes signs, symptoms and co-morbidities, what to expect from clinical diagnosis, and management. If you are newly diagnosed; then this book tells you what you most need to know about the conditions. Professionals in health and social care will also benefit from reading this book; so as to gain a broader understanding of the complex issues surrounding what are multi-systemic conditions, and the impact on their patients on a day to day basis.

This book can be read cover to cover if the reader chooses. Alternatively, it could be effectively used as an encyclopaedic tool and relevant sections read when needed.  Each bodily system is covered but, importantly, the book also focuses on how to live well with these conditions.  Resources for readers have been added where possible, to allow further reading.  I am pleased to note the section on anxiety based disorders, something which is often overlooked and yet must be managed successfully if a person is to progress to positive self-management.

One of the remarkable features of this book is the author’s ability to provide insight and observations that help bridge the gap between the viewpoint of clinicians and that of their patients, helping them achieve effective communication and understanding. Communication barriers often go undetected in health care settings and can have serious effects on the health and safety of patients.

I would like to congratulate Claire – this book has been a 5 year project for her; it is extremely well written and great care has been taken to explain medical terms. Few people, regardless of experience, will read this book without having learned something.  I recommend it without reservation to all of the hEDS/HSD community and those who support them.
Donna Wicks
CEO & Senior Medical Liaison Officer
Hypermobility Syndromes Association

You can buy this excellent book from https://www.redcliffhousepublications.co.uk/product-page/understanding-hypermobile-ehlers-danlos-syndrome-hypermobility-spectrum-disord

The HMSA receives a percentage of every book sold.

 

Other books;

We have listed below a variety of books you may also find helpful-and if you buy them by clicking through to Amazon from this page you also help the HMSA because Amazon will give us a small percentage on sales.

The following publications are available from Amazon.co.uk. The HMSA will benefit from any purchases of the following resources under the Amazon Associate scheme.

Hypermobility, Fibromyalgia and Chronic Pain – Dr Alan J Hakim, Rosemary J. Keer, Prof. Rodney Grahame

Synopsis Hypermobility, Fibromyalgia and Chronic Pain takes a multi-specialty and multidisciplinary approach to understanding JHS and its management, drawing together expertise from a broad group of internationally-recognized authors….

Hypermobility Syndrome – Recognition and Management for Physiotherapists – Rosemary J. Keer MSc MCSP MACP, Prof. Rodney Grahame CBE MD FRCP FACP

Synopsis Hypermobility Syndrome is a condition often encountered in patients, but it is easily overlooked. This book brings HMS to the attention of physiotherapists and other health care professionals…

Joint Hypermobility Handbook- A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome – Brad T Tinkle MD PHD

Synopsis As a followup to his previous best-selling book, “Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome,” Dr. Tinkle has created this handbook with several contributors…

The Arthritis Helpbook: A Tested Self-management Program for Coping with Arthritis and Fibromyalgia – Kate Lorig, James F. Fries

Synopsis Offering a practical programme to help people with arthritis and fibromyalgia manage their conditions, this handbook provides techniques to reduce pain and increase dexterity, helping sufferers to regain control of their lives…

Therapeutic Exercise for Spinal Segmental Stabilisation in Low Back Pain – Carolyn Richardson PhD BPhty(Hons), Gwendolen Jull PhD MPhty Grad Dip Man Ther FACP, Paul W. Hodges PhD MD(Neurosci) BPhty(Hons), Julie Hides PhD MPhtyST Bphty Dr.

Book Description This long awaited book presents a new approach to therapeutic exercise for the back. The approach focuses on stabilisation training of the muscles affecting the back. Instability of the back is now recognised as a major underlying cause of back pain.

IKnight - 51usQCAXKWL._SL500_PIsitb-sticker-arrow-big,TopRight,35,-73_SL150_OU02_Click Here for Link to Amazon

A Guide to Living With Hypermobility Syndrome: Bending without Breaking – Isobel Knight

New Edition December 2014

Book Description 

Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type – formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: Changes in terminology; Information on how osteopathy and nutrition can help; Psychological approaches beyond CBT; How to deal with professionals; What to expect from support groups and rehabilitation programmes. This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.

A Multidisciplinary Approach to Managing Ehlers-Danlos (Type III) – Hypermobility Syndrome: Working With the Chronic Complex Patient – Isobel Knight

Book Description Ehlers Danlos-Hypermobility Syndrome is a challenging condition which is often misunderstood and misdiagnosed. This book looks at how physiotherapy can provide effective and lasting relief for sufferers. The book explains how EDHS is diagnosed and how a physical assessment of the patient should be carried out.

 


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