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Lists of professionals with an ‘interest in hypermobility’ or hypermobility services.

Posted By Donna Wicks, April 18, 2017

How to use this page.

In the past, we have concentrated on providing details of only UK specialist clinics or HMSA Medical Advisors, as recommendations for people to seek referrals to. However, HMSA members are clearly asking for details of professionals who are in their geographical area; who ‘may’ have had training, or ‘expressed an interest’ in hypermobility or have been ‘recommended’ by other service users and HMSA members.

The professional names we  list on this page are  NOT  officially recommended by the HMSA. We have no influence over medical, health and social care practitioners and therefore, are not liable for any care or advice given by professionals listed on this page.

It is also important to remember, that in the majority of (UK) NHS service providers, you cannot refer to an individual. It is normal procedure to refer to the department, rather than a named professional within that department.

It is also important to remember that some referrals to tertiary services (specialist clinics) need a consultant and not a GP referral. Where we know this to be the case, we have included the information.

It is also worth noting, that professionals tell the HMSA that the information on the referrals they receive are not in enough detail to enable the service or professional to make an informed decision as to whether to accept the referral. This is one of the reasons so many referrals are rejected. The HMSA will be providing guidelines in the Professional’s Section on how to write a referral in the next few months. This should help GPs (and other professionals), to make good quality referrals to services and practitioners, hopefully reducing the time that it takes for a successful referral.

This page will be updated monthly.

Members of the HMSA, and the wider public, can make suggestions of names and services who could be listed on this page by emailing info@hypermobility.org with the following information; a) name of professional or service, b) department or discipline, c) full address and preferably an email address.

We are particularly interested in building up a list of services and professionals overseas due to our international reach and our overseas HMSA members.

The HMSA always asks professionals to ‘opt-out’ if they do not want to be listed in the public domain on our website, as having experience with, or an interest in hypermobility. There are a variety of valid reasons for professionals to ask to not be listed and we do our best to respect these as far as possible.

UK Hypermobility Clinics

At most hospitals ‘hypermobility’ is dealt with under ‘rheumatology’ for adults, and ‘paediatrics’ for children though there may be also be rheumatology services where children are seen. The following addresses are of hospitals where there is an established multi-disciplinary service in hypermobility, that has been agreed with the hospital, and where the hospital has given permission for the HMSA to advertise the service. Much is being done to encourage interest and support the development of other rheumatology departments around the UK. The HMSA wishes to be inclusive at all times, and invites all specialist services to add their details to this directory at any time by contacting the charity office.


Children’s Clinic*

Sue Maillard
Hypermobility Clinic
Rheumatology Department
Great Ormond Street Hospital
Great Ormond Street
London
WC1N 3JH

*Referrals to the Children’s Hypermobility Clinic at Great Ormond Street are by a Consultant only; no GP referrals will be accepted. Clinic is for children over 5 years of age. All children should be symptomatic of a functional hypermobility syndrome and not referred due to relative’s diagnosis of Hypermobility Spectrum Disorder or hypermobile Ehlers-Danlos syndrome.

Adult Clinics**

Dr Hana Kazkaz
The Hypermobility Clinic
Department of Rheumatology
University College Hospital
3rd Floor
250 Euston Road
LONDON
NW1 2BU
 
 
Private
The Hypermobility Unit (Private. Adult / Adolescent / Child)***
The Hospital Of St. John and St. Elizabeth’s,
60 Grove Road,
St. Johns Wood,
London.
NW8 (NH
***The Hypermobility Unit at St. John and St. Elizabeth’s is a private facility. You will need to contact the administrator on 020 7806 4060 for details of cost and to book an appointment. The unit accepts self-referral, as well as referral from GPs and other health professionals. However, if you are using health insurance please ensure your referral meets the insurers’ requirements and that you have the correct authorisation/approval from them.

 

Professionals with an interest in hypermobility disorders (in geographical areas).

Essex;

Name of Professional – Abi Johnson, Occupational Therapist,

Name of Service – ‘Occupational Therapy Essex’

Area; Brentwood, Essex

Email; abi@occupationaltherapyessex.co.uk

Website; www.occupationaltherapyessex.co.uk

Contact number; 07903 085883

‘Professionally my areas of particular interest are handwriting, coordination and anxiety.’

 

Kent;

Name of Professional – Serena Woolf, MA, BSc(Hons), MSTAT,

Name of Service – Alexander Technique Teacher,

Area; Folkestone, Kent

Email; serena.woolf@gmail.com

Member of ‘The HMSA & Kent Hypermobility Network’

‘Alexander Technique Teacher, specialising in chronic pain’

 

 

 

 


Disclaimer
The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.
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