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Local Groups

Posted By Donna Wicks, June 16, 2014

The HMSA is a dynamic charity which provides a network of support groups throughout the UK. All our Group Leaders are trained and have clear DBS’s. The HMSA  is proud that our groups are recommended by many hospitals and individual professionals because of our positive ethos and the dedication of our Group Leaders.

The HMSA is highly skilled in providing active support groups and we have done so for many years. We are the only charity for all people with Joint Hypermobility Syndrome, Ehlers-Danlos syndrome (all sub-types), Marfan syndrome, Sticklers and Osteogenesis Imperfecta which holds the Information Standard. The Information Standard is an accreditation by NHS England on the quality of the evidence based information we provide and the HMSA has led the way for other charities for similar conditions to follow suit. The HMSA is proud to be a leader in this field and we continue to provide information which can be relied on.

Why not think about coming along, having some support from other people with the conditions and learning how to effectively manage your condition on a day to day basis? Being part of a support network and attending groups can be a powerful tool to aid management. You and your family will be warmly welcomed to the groups.

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Anyone can attend a group before becoming a full HMSA member. Group Leaders can  help you to complete the membership process and provide you with the booklets and articles for your management toolkit!

There are details of some groups meetings in a locked section on the HMSA Forum. Please see the topic on access to locked areas.

Local groups and regional contacts are listed below, by area. Please note that we are governed by the Data Protection Act and, for this reason, we can only give out contact information regarding others with HMS in your area to individuals who are members of the charity and have agreed to do so and we only do so via Group Leaders at meetings.

If you would like to become a member simply click here and fill out a membership form.

 

HMSA Local Group Leaders

 

Local Groups Coordinator for England, Wales, Scotland and Ireland

Catherine Eves click here to email

 

East Anglia

Essex Group Leader - Tracy Sleeman click here to email

Click here to visit HMSA Essex Facebook page          Twitter: @HMSAEssex

 

Norfolk Group Leader & Suffolk Contact – Tabi Farrow click here to email 07882 320686

Click here to visit HMSA Norfolk Facebook page          Twitter:@HMSANorfolk

 

East England

Cambridge Group Leader – Hayley Raine-Diplock click here to email 07590 544938

Click here to visit HMSA Cambridge Facebook page

 

Northampton Group Leader – Jo Southall click here to email 07507 894759

Northampton Group Deputy – Caroline Richey click here to email 07791745734

Click here to visit HMSA Northampton Facebook page          Twitter: @HMSANorthampton

 

Peterborough Group Leader - Kim Clayden click here to email 07738873410

Click here to Visit HMSA Peterborough Facebook page          Twitter: @HMSAPeterboro

 

London

London Group Leader & Central London Contact - Isobel Knight click here to email 07947 475082

London Group Deputy - Tamar Balakjian click here to email 07787808724

North London Contact – Laura Brody click here to email 0208 621 4014

South London Contact – Sonia Baines click here to email

Click here to visit HMSA London Facebook page          Twitter: @HMSALondon

 

Midlands

Birmingham Group Leader - Jenny Tate click here to email 07887 565412

Click here to visit HMSA Birmingham Facebook page          Twitter: @HMSABirmingham

 

Burton on Trent Group Leader - Abi Willshee  click here to email 07455 341255

Click here to visit HMSA Burton Facebook page          Twitter: @HMSABurton

 

Northern England

Cumbria Group Leader – Susan Holmes click here to email  01900 821507

Cumbria Group Deputy – Becki Stott click here to email

Click here to visit HMSA Cumbria Facebook page          Twitter: @HMSACumbria

 

Durham Group Leader & Teeside Contact – Naomi Vickers click here to email  01642 788030

Click here to visit HMSA Durham Facebook page          Twitter: @HMSADurham

 

Harrogate Group Leader – Jen Patchett click here to email

Click here to visit HMSA Harrogate Facebook page          Twitter: @HMSAHarrogate

 

Manchester Group Leader – Rose Marie Dawson click here to email  0161 303 79632 / 07791 785086

Click here to visit HMSA Manchester Facebook page          Twitter: @HMSAManchester

 

Preston Group Leader – Natalie Hicks click here to email 07855 777635

Click here to visit HMSA Preston Facebook page          Twitter: @HMSAPreston

 

Rochdale Group Leader – Catherine Eves click here to email 07777 692041

Click here to visit HMSA Rochdale Facebook page          Twitter: @HMSARochdale

 

Manchester, Preston & Rochdale Deputy Leader - Kath Glover click here to email 07883 486916

 

Selby Group Leader - Melanie Howram click here to email 07513709397

 

South Central England

Hampshire Group Leader – Julie Hyans click here to email

Click here to visit HMSA Hampshire Facebook page           Twitter: @HMSAHampshire

 

Milton Keynes Group Leader – Emma Frith click here to email

 

Oxford Contact – Emma Frith click here to email

 

South East England 

Crawley Group Leader – Carla Spear click here to email

Click here to visit HMSA Crawley Facebook page          Twitter: @HMSACrawley

 

Kent Group - Fiona Kennard click here to email  07891 283996

Twitter: @HMSAKent

 

West Sussex Group Leader & Brighton Contact – Rosie Denham click here to email  01903 763706

 

South West England

Bristol Group Leader – Cara Reay click here to email

Click here to visit HMSA Bristol Facebook page          Twitter: @HMSABristol

 

Exeter Group Leader – Gemma Marshall click here to email  01548 852937

Click here to visit HMSA Exeter Facebook page          Twitter: @HMSAExeter

 

Plymouth Group Leader – Abi Patrick click here to email  07879 286258

Click here to visit HMSA Plymouth Facebook page          Twitter: @HMSAPlymouth

 

Swindon Group Leader – Jennifer Bruce click here to email 07747 691649

Click here to visit HMSA Swindon Facebook page          Twitter: @HMSASwindon

 

Scotland 

Edinburgh Group Leader – Lauren Munro click here to email

Click here to visit HMSA Edinburgh Facebook page          Twitter: @HMSAEdinburgh

 

Lanarkshire Group Leader & Glasgow Contact – Marion Dekeijser click here to email

Click here to visit HMSA Lanarkshire Facebook page          Twitter: @HMSALanarkshire

 

Wales 

Cardiff Group Leader – Angharad Slack click here to email

Click here to visit HMSA Cardiff Facebook page          Twitter: @HMSACardiff

 

 

All HMSA Members can attend any HMSA Group Meeting. Non-members may attend one meeting before becoming full HMSA members. The majority of groups are advertised on the Local Group section of the HMSA Forum and on our official national HMSA Facebook page.

Each Local Group should have an additional open official HMSA Facebook page (official groups have the HMSA logo). The open Facebook page is open to all people but within that page there will be a closed group section for HMSA members only.

Can’t find a group in your area then why not start one? Just e-mail our Local Groups Coordinator and we’ll have you up and running in no time!


Disclaimer
The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.