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Local Groups

Posted By Donna Wicks, June 16, 2014

The HMSA is a dynamic charity which provides a network of support groups throughout the UK. All our Group Leaders are trained and have clear DBS’s. The HMSA  is proud that our groups are recommended by many hospitals and individual professionals because of our positive ethos and the dedication of our Group Leaders.

The HMSA is highly skilled in providing active support groups and we have done so for many years. We are the only charity for all people with Joint Hypermobility Syndrome, Ehlers-Danlos syndrome (all sub-types), Marfan syndrome, Sticklers and Osteogenesis Imperfecta which holds the Information Standard. The Information Standard is an accreditation by NHS England on the quality of the evidence based information we provide and the HMSA has led the way for other charities for similar conditions to follow suit. The HMSA is proud to be a leader in this field and we continue to provide information which can be relied on.

Why not think about coming along, having some support from other people with the conditions and learning how to effectively manage your condition on a day to day basis? Being part of a support network and attending groups can be a powerful tool to aid management. You and your family will be warmly welcomed to the groups.

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Anyone can attend a group before becoming a full HMSA member. Group Leaders can help you to complete the membership process and provide you with the booklets and articles for your management toolkit!

Local groups and regional contacts are listed below, by area. Please note that we are governed by the Data Protection Act and, for this reason, we can only give out contact information regarding others with HMS in your area to individuals who are members of the charity and have agreed to do so and we only do so via Group Leaders at meetings.

To contact your local Leader please send them an email or use the appropriate link to contact them via Facebook or Twitter. Once you are a full HMSA member you will also receive a contact telephone number for your Local Group Leader. If you do not have email, Facebook or Twitter access please call our helpline on 03330 116 388 and one of our Volunteers will arrange for your local Leader to contact you directly.

If you would like to become a member simply click here and fill out a membership form.


HMSA Local Group Leaders


Local Groups for England, Wales, Scotland and Ireland

click here to email


North West England

Cumbria Group – Becki Stott click here to email

Click here to visit HMSA Cumbria Facebook page          Twitter: @HMSACumbria


Bolton Group Leader – Kath Glover click here to email

Click here to visit HMSA Bolton Facebook page          Twitter: @HMSABolton


Rochdale Group Leader – Catherine Eves click here to email

Rochdale Group Deputy – Rachel Cracknell click here to email

Click here to visit HMSA Rochdale Facebook page          Twitter: @HMSARochdale


East Midlands

Nottingham Group Leader – Wendy Turner  click here to email

Click here to visit HMSA Nottingham Facebook page          Twitter: @HMSANottingham


North East England 

Gateshead Group Leader – Claire Ellison click here to email

Click here to visit HMSA Gateshead Facebook page


South East England


Hampshire Group Leader – Julie Hyans click here to email

Hampshire Group Deputy – Cathy Board click here to email

Click here to visit HMSA Hampshire Facebook page           Twitter: @HMSAHampshire


South West England 

Plymouth Group Leader – Donna Wicks click here to email

Click here to visit HMSA Plymouth Facebook page          Twitter: @HMSAPlymouth




Tayside Group Leader – Susan Doogan click here to email

Click here to visit HMSA Tayside Facebook page          Twitter: @HMSATayside



Cardiff Group Leader – Angharad Slack click here to email

Click here to visit HMSA Cardiff Facebook page          Twitter: @HMSACardiff


All HMSA Members can attend any HMSA Group Meeting. Non-members may attend one meeting before becoming full HMSA members. The majority of groups are advertised on the Local Group section of the HMSA Forum and on our official national HMSA Facebook page.

Each Local Group should have an additional open official HMSA Facebook page (official groups have the HMSA logo). The open Facebook page is open to all people but within that page there will be a closed group section for HMSA members only.

Can’t find a group in your area then why not start one? Just e-mail and we’ll have you up and running in no time!

The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.
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