The HMSA is a dynamic charity which provides a network of support groups throughout the UK. All our Group Leaders are trained and have clear DBS’s. The HMSA is proud that our groups are recommended by many hospitals and individual professionals because of our positive ethos and the dedication of our Group Leaders.
The HMSA is highly skilled in providing active support groups and we have done so for many years. We are the only charity for all people with Joint Hypermobility Syndrome, Ehlers-Danlos syndrome (all sub-types), Marfan syndrome, Sticklers and Osteogenesis Imperfecta which holds the Information Standard. The Information Standard is an accreditation by NHS England on the quality of the evidence based information we provide and the HMSA has led the way for other charities for similar conditions to follow suit. The HMSA is proud to be a leader in this field and we continue to provide information which can be relied on.
We have a lot planned for next year (2014) in our Groups so why not think about coming along, having some support from other people with the conditions and learning how to effectively manage your condition on a day to day basis? Being part of a support network and attending groups can be a powerful tool to aid management. You and your family will be warmly welcomed to the groups.
Anyone can attend a group before becoming a full HMSA member. Group Leaders can help you to complete the membership process and provide you with the booklets and articles for your management toolkit!
There are details of some groups meetings in a locked section on the HMSA Forum. Please see the topic on access to locked areas.
Local groups and regional contacts are listed below, by area. Please note that we are governed by the Data Protection Act and, for this reason, we can only give out contact information regarding others with HMS in your area to individuals who are members of the charity and have agreed to do so and we only do so via Group Leaders at meetings.
If you would like to become a member simply click here and fill out a membership form.
Norfolk & Suffolk; Tabi Farrow firstname.lastname@example.org 07882 320686.
Bedfordshire; Emily Andrews email@example.com 07814 622753
Cambridgeshire; Hayley Raine-Diplock firstname.lastname@example.org 07590 544938
Northamptonshire; Jo Southall email@example.com 07507 894759
Northamptonshire; Caroline Richey firstname.lastname@example.org 07791745734
Central London; Isobel Knight email@example.com 07947 475082
London; Tamar Balakjian firstname.lastname@example.org 07787808724
North London; Laura Brody email@example.com 0208 621 4014
South London; Sonia Baines firstname.lastname@example.org
Birmingham; Alison Russell email@example.com 0121 689 7565
Birmingham; Jenny Tate firstname.lastname@example.org 07887 565412
Leicestershire; Sandra Herbert email@example.com
Bolton; Kath Glover firstname.lastname@example.org 07883 486916
Cumbria; Susan Holmes email@example.com 01900 821507
Cumbria; Becki Stott firstname.lastname@example.org
Liverpool; Cara Reay email@example.com
Manchester; Rose Marie Dawson firstname.lastname@example.org 0161 303 79632 / 07791 785086
Preston; Natalie Hicks email@example.com 0844 887 2419
Rochdale; Catherine Eves firstname.lastname@example.org 07777 692041
Teeside/County Durham; Naomi Vickers email@example.com 01642 788030
Yorkshire; Jen Patchett firstname.lastname@example.org 07545 342029
South Central England
Buckinghamshire; Kay Griffiths email@example.com 01908 677967
Hampshire; Julie Hyans firstname.lastname@example.org
Isle of Wight; Vikki Thomas email@example.com
South East England
Brighton/West Sussex; Rosie Denham firstname.lastname@example.org 01903 763706
Crawley; Carla Spear email@example.com
Kent; Poppy Wooldridge firstname.lastname@example.org
South West England
Bristol; Cara Reay email@example.com
Devon and Cornwall; Abi Patrick firstname.lastname@example.org 07879 286258
Exeter; Gemma Marshall email@example.com 01363 85664
Swindon; Jennifer Bruce firstname.lastname@example.org 07747 691649
Aberdeen; Sarah Peatfield email@example.com
Edinburgh; Lauren Munro firstname.lastname@example.org
Lanarkshire; Marion Dekeijser email@example.com
Cardiff; Angharad Slack firstname.lastname@example.org
England, Wales, Scotland and Ireland Regional Contact
Abi Patrick email@example.com 07879 286258
All HMSA Members can attend any HMSA Group Meeting. Non-members may attend one meeting before becoming full HMSA members. The majority of groups are advertised on the Local Group section of the HMSA Forum and on our official national HMSA Facebook page.
Each Local Group should have an additional open official HMSA Facebook page (official groups have the HMSA logo). The open Facebook page is open to all people but within that page there will be a closed group section for HMSA members only.
Can’t find a group in your area then why not start one? Just e-mail your regional contact (above) and we’ll have you up and running in no time!
Download the Group leader criteria here.