The HMSA is a dynamic charity which provides a network of support groups throughout the UK. All our Group Leaders are trained and have clear DBS’s. The HMSA is proud that our groups are recommended by many hospitals and individual professionals because of our positive ethos and the dedication of our Group Leaders.
The HMSA is highly skilled in providing active support groups and we have done so for many years. We are the only charity for all people with Joint Hypermobility Syndrome, Ehlers-Danlos syndrome (all sub-types), Marfan syndrome, Sticklers and Osteogenesis Imperfecta which holds the Information Standard. The Information Standard is an accreditation by NHS England on the quality of the evidence based information we provide and the HMSA has led the way for other charities for similar conditions to follow suit. The HMSA is proud to be a leader in this field and we continue to provide information which can be relied on.
Why not think about coming along, having some support from other people with the conditions and learning how to effectively manage your condition on a day to day basis? Being part of a support network and attending groups can be a powerful tool to aid management. You and your family will be warmly welcomed to the groups.
Anyone can attend a group before becoming a full HMSA member. Group Leaders can help you to complete the membership process and provide you with the booklets and articles for your management toolkit!
There are details of some groups meetings in a locked section on the HMSA Forum. Please see the topic on access to locked areas.
Local groups and regional contacts are listed below, by area. Please note that we are governed by the Data Protection Act and, for this reason, we can only give out contact information regarding others with HMS in your area to individuals who are members of the charity and have agreed to do so and we only do so via Group Leaders at meetings.
To contact your local Leader please send them an email or use the appropriate link to contact them via Facebook or Twitter. Once you are a full HMSA member you will also receive a contact telephone number for your Local Group Leader. If you do not have email, Facebook or Twitter access please call our helpline on 03330 116 388 and one of our Volunteers will arrange for your local Leader to contact you directly.
If you would like to become a member simply click here and fill out a membership form.
HMSA Local Group Leaders
Local Groups Coordinator for England, Wales, Scotland and Ireland
Catherine Eves click here to email
Deputy Local Groups Coordinator – Kath Glover click here to email
Solihull Group Leader – Shelley Cooke click here to email
North West England
Cumbria Group Leader – Susan Holmes click here to email
Cumbria Group Deputy – Becki Stott click here to email
Liverpool Group Leader - Sarah Wilson click here to email
Bolton Group Leader – Kath Glover click here to email
Rochdale Group Leader – Catherine Eves click here to email
Rochdale Group Deputy – Kath Glover click here to email
Selby Group Leader - Melanie Howram click here to email
Burton on Trent Group Leader - Abi Willshee click here to email
East of England
Cambridge Group Leader – Hayley Raine-Diplock click here to email
Essex Group Leader - Tracy Sleeman click here to email
Peterborough Group Leader - Kim Clayden click here to email
Suffolk Group Leader - Jo Southall click here to email
London Group leader – Sonia Baines click here to email
Sunbury-on-Thames Group Leader – Danielle Piggott click here to email
South East England
Crawley & Mid Sussex Group Leader – Carla Spear click here to email
Hampshire Group Leader – Julie Hyans click here to email
Hampshire Group Deputy – Cathy Board click here to email
Kent Group Co-Leader - Fiona Kennard click here to email
Kent Group Co-Leader – Jenny Parris click here to email
South West England
Exeter Group Leader – Gemma Marshall click here to email
Plymouth Group Leader – Abi Patrick click here to email
Swindon Group Leader – Jennifer Bruce click here to email
Edinburgh Group Leader – Lauren Munro click here to email
Lanarkshire Group Leader & Glasgow Contact – Marion Dekeijser click here to email
Lanarkshire Group Deputy – Katy Westmore click here to email
Ayrshire Group Leader & Contact – Sarah McDougall click here to email
Cardiff Group Leader – Angharad Slack click here to email
All HMSA Members can attend any HMSA Group Meeting. Non-members may attend one meeting before becoming full HMSA members. The majority of groups are advertised on the Local Group section of the HMSA Forum and on our official national HMSA Facebook page.
Each Local Group should have an additional open official HMSA Facebook page (official groups have the HMSA logo). The open Facebook page is open to all people but within that page there will be a closed group section for HMSA members only.
Can’t find a group in your area then why not start one? Just e-mail our Local Groups Coordinator and we’ll have you up and running in no time!