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Local Groups

Posted By Donna Wicks, June 16, 2014

The HMSA is a dynamic charity which provides a network of support groups throughout the UK. All our Group Leaders are trained and have clear DBS’s. The HMSA  is proud that our groups are recommended by many hospitals and individual professionals because of our positive ethos and the dedication of our Group Leaders.

The HMSA is highly skilled in providing active support groups and we have done so for many years. We are the only charity for all people with Joint Hypermobility Syndrome, Ehlers-Danlos syndrome (all sub-types), Marfan syndrome, Sticklers and Osteogenesis Imperfecta which holds the Information Standard. The Information Standard is an accreditation by NHS England on the quality of the evidence based information we provide and the HMSA has led the way for other charities for similar conditions to follow suit. The HMSA is proud to be a leader in this field and we continue to provide information which can be relied on.

Why not think about coming along, having some support from other people with the conditions and learning how to effectively manage your condition on a day to day basis? Being part of a support network and attending groups can be a powerful tool to aid management. You and your family will be warmly welcomed to the groups.

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Anyone can attend a group before becoming a full HMSA member. Group Leaders can  help you to complete the membership process and provide you with the booklets and articles for your management toolkit!

There are details of some groups meetings in a locked section on the HMSA Forum. Please see the topic on access to locked areas.

Local groups and regional contacts are listed below, by area. Please note that we are governed by the Data Protection Act and, for this reason, we can only give out contact information regarding others with HMS in your area to individuals who are members of the charity and have agreed to do so and we only do so via Group Leaders at meetings.

To contact your local Leader please send them an email or use the appropriate link to contact them via Facebook or Twitter. Once you are a full HMSA member you will also receive a contact telephone number for your Local Group Leader. If you do not have email, Facebook or Twitter access please call our helpline on 03330 116 388 and one of our Volunteers will arrange for your local Leader to contact you directly.

If you would like to become a member simply click here and fill out a membership form.

 

HMSA Local Group Leaders

 

Local Groups Coordinator for England, Wales, Scotland and Ireland

Catherine Eves click here to email

Deputy Local Groups Coordinator – Kath Glover click here to email

 

West Midlands

Solihull Group Leader – Shelley Cooke click here to email

Click here to visit HMSA Solihull Facebook page          Twitter: @HMSASolihull

 

 

North West England

Cumbria Group Leader – Susan Holmes click here to email

Cumbria Group Deputy – Becki Stott click here to email

Click here to visit HMSA Cumbria Facebook page          Twitter: @HMSACumbria

 

Liverpool Group Leader – Sarah Wilson click here to email

Click here to visit HMSA Liverpool Facebook page          Twitter: @HMSALiverpool

 

Bolton Group Leader – Kath Glover click here to email

Click here to visit HMSA Manchester Facebook page          Twitter: @HMSAManchester

 

Rochdale Group Leader – Catherine Eves click here to email

Rochdale Group Deputy – Kath Glover click here to email

Click here to visit HMSA Rochdale Facebook page          Twitter: @HMSARochdale

 
 

Selby Group Leader – Melanie Howram click here to email

Click here to visit HMSA Selby Facebook Page          Twitter: @HMSASelby

 

East Midlands

Burton on Trent Group Leader – Abi Willshee  click here to email

Click here to visit HMSA Burton Facebook page          Twitter: @HMSABurton

 

 

East of England

Cambridge Group Leader – Hayley Raine-Diplock click here to email

Click here to visit HMSA Cambridge Facebook page          Twitter: @HMSACambs

 

Essex Group Leader – Tracy Sleeman click here to email

Click here to visit HMSA Essex Facebook page          Twitter: @HMSAEssex

 

Peterborough Group Leader – Kim Clayden click here to email

Click here to visit HMSA Peterborough Facebook page          Twitter: @HMSAPeterboro

 

Suffolk Group Leader – Jo Southall click here to email

Click here to visit HMSA Suffolk Facebook page          Twitter: @HMSASuffolk

 

London

London Group leader – Sonia Baines click here to email

Click here to visit HMSA London Facebook page          Twitter: @HMSALondon

 

Sunbury-on-Thames Group Leader – Danielle Piggott click here to email

Click here to visit HMSA Sunbury Facebook page          Twitter: @HMSASunbury    

 

 

South East England

Crawley & Mid Sussex Group Leader – Carla Spear click here to email

Click here to visit HMSA Crawley Facebook page          Twitter: @HMSACrawley

 

Hampshire Group Leader – Julie Hyans click here to email

Hampshire Group Deputy – Cathy Board click here to email

Click here to visit HMSA Hampshire Facebook page           Twitter: @HMSAHampshire

 

Kent Group Co-Leader – Fiona Kennard click here to email

Kent Group Co-Leader – Jenny Parris click here to email

Click here to visit HMSA Kent Facebook page           Twitter: @HMSAKent

 

 

South West England 

Exeter Group Leader – Gemma Marshall click here to email

Click here to visit HMSA Exeter Facebook page          Twitter: @HMSAExeter

 

Plymouth Group Leader – Abi Patrick click here to email

Click here to visit HMSA Plymouth Facebook page          Twitter: @HMSAPlymouth

 

Swindon Group Leader – Jennifer Bruce click here to email

Click here to visit HMSA Swindon Facebook page          Twitter: @HMSASwindon

 

Scotland 

Edinburgh Group Leader – Lauren Munro click here to email

Click here to visit HMSA Edinburgh Facebook page          Twitter: @HMSAEdinburgh

 

Lanarkshire Group Leader & Glasgow Contact – Marion Dekeijser click here to email

 

Lanarkshire Group Deputy – Katy Westmore click here to email

Click here to visit HMSA Lanarkshire Facebook page          Twitter: @HMSALanarkshire

 

Ayrshire Group Leader & Contact – Sarah McDougall click here to email

Click here to visit HMSA Ayrshire Facebook page          Twitter: @HMSA_Ayrshire

 

Wales 

Cardiff Group Leader – Angharad Slack click here to email

Click here to visit HMSA Cardiff Facebook page          Twitter: @HMSACardiff

 

All HMSA Members can attend any HMSA Group Meeting. Non-members may attend one meeting before becoming full HMSA members. The majority of groups are advertised on the Local Group section of the HMSA Forum and on our official national HMSA Facebook page.

Each Local Group should have an additional open official HMSA Facebook page (official groups have the HMSA logo). The open Facebook page is open to all people but within that page there will be a closed group section for HMSA members only.

Can’t find a group in your area then why not start one? Just e-mail our Local Groups Coordinator and we’ll have you up and running in no time!


Disclaimer
The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.
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