The HMSA is a dynamic charity which provides a network of support groups throughout the UK. All our Group Leaders are trained and have clear DBS’s. The HMSA is proud that our groups are recommended by many hospitals and individual professionals because of our positive ethos and the dedication of our Group Leaders.
The HMSA is highly skilled in providing active support groups and we have done so for many years. We are the only charity for all people with Joint Hypermobility Syndrome, Ehlers-Danlos syndrome (all sub-types), Marfan syndrome, Sticklers and Osteogenesis Imperfecta which holds the Information Standard. The Information Standard is an accreditation by NHS England on the quality of the evidence based information we provide and the HMSA has led the way for other charities for similar conditions to follow suit. The HMSA is proud to be a leader in this field and we continue to provide information which can be relied on.
Why not think about coming along, having some support from other people with the conditions and learning how to effectively manage your condition on a day to day basis? Being part of a support network and attending groups can be a powerful tool to aid management. You and your family will be warmly welcomed to the groups.
Anyone can attend a group before becoming a full HMSA member. Group Leaders can help you to complete the membership process and provide you with the booklets and articles for your management toolkit!
There are details of some groups meetings in a locked section on the HMSA Forum. Please see the topic on access to locked areas.
Local groups and regional contacts are listed below, by area. Please note that we are governed by the Data Protection Act and, for this reason, we can only give out contact information regarding others with HMS in your area to individuals who are members of the charity and have agreed to do so and we only do so via Group Leaders at meetings.
If you would like to become a member simply click here and fill out a membership form.
HMSA Local Group Leaders
Local Groups Coordinator for England, Wales, Scotland and Ireland
Catherine Eves click here to email
Essex Group Leader - Tracy Sleeman click here to email
Norfolk Group Leader & Suffolk Contact – Tabi Farrow click here to email 07882 320686
Cambridge Group Leader – Hayley Raine-Diplock click here to email 07590 544938
Northampton Group Leader – Jo Southall click here to email 07507 894759
Northampton Group Deputy – Caroline Richey click here to email 07791745734
Peterborough Group Leader - Kim Clayden click here to email 07738873410
London Group Leader & Central London Contact - Isobel Knight click here to email 07947 475082
London Group Deputy - Tamar Balakjian click here to email 07787808724
North London Contact – Laura Brody click here to email 0208 621 4014
South London Contact – Sonia Baines click here to email
Birmingham Group Leader - Jenny Tate click here to email 07887 565412
Burton on Trent Group Leader - Abi Willshee click here to email 07455 341255
Cumbria Group Leader – Susan Holmes click here to email 01900 821507
Cumbria Group Deputy – Becki Stott click here to email
Durham Group Leader & Teeside Contact – Naomi Vickers click here to email 01642 788030
Harrogate Group Leader – Jen Patchett click here to email
Manchester Group Leader – Rose Marie Dawson click here to email 0161 303 79632 / 07791 785086
Preston Group Leader – Natalie Hicks click here to email 07855 777635
Rochdale Group Leader – Catherine Eves click here to email 07777 692041
Manchester, Preston & Rochdale Deputy Leader - Kath Glover click here to email 07883 486916
Selby Group Leader - Melanie Howram click here to email 07513709397
South Central England
Hampshire Group Leader – Julie Hyans click here to email
Milton Keynes Group Leader – Emma Frith click here to email
Oxford Contact – Emma Frith click here to email
South East England
Crawley Group Leader – Carla Spear click here to email
Kent Group - Fiona Kennard click here to email 07891 283996
West Sussex Group Leader & Brighton Contact – Rosie Denham click here to email 01903 763706
South West England
Bristol Group Leader – Cara Reay click here to email
Exeter Group Leader – Gemma Marshall click here to email 01548 852937
Plymouth Group Leader – Abi Patrick click here to email 07879 286258
Swindon Group Leader – Jennifer Bruce click here to email 07747 691649
Edinburgh Group Leader – Lauren Munro click here to email
Lanarkshire Group Leader & Glasgow Contact – Marion Dekeijser click here to email
Cardiff Group Leader – Angharad Slack click here to email
All HMSA Members can attend any HMSA Group Meeting. Non-members may attend one meeting before becoming full HMSA members. The majority of groups are advertised on the Local Group section of the HMSA Forum and on our official national HMSA Facebook page.
Each Local Group should have an additional open official HMSA Facebook page (official groups have the HMSA logo). The open Facebook page is open to all people but within that page there will be a closed group section for HMSA members only.
Can’t find a group in your area then why not start one? Just e-mail our Local Groups Coordinator and we’ll have you up and running in no time!