We have calls for participants in a couple of research studies from Glasgow Caledonian University to share with you all, one on proprioception requiring JHS and control candidates and the other on knee stability, which aims to develop computational tools to evaluate knee stability. For further information, participant requirements and contact details for each study please see the attached poster images.
Our family programmes are very popular. With separate sessions for adults and children, the focus is on living positively with a hypermobility syndrome and how to actively manage our own conditions.
We are aiming to have them all over the UK. In recent months we have held them in Alton, Hampshire and also Swansea. We have had some fantastic feedback from those that attended.
Our next family programmme is in Taunton on August 15th 2015. To order tickets online and for more information check out our shop here.
One of the questions the HMSA are most frequently asked, is how to cope with persistent (chronic) fatigue. Produced by the HMSA, under the guidelines laid out in NHS England’s Information Standard, this guide aims to provide readers with a better understanding of its management. Due to popular demand (following publication in our journal) we’re very pleased to be offering the Persistent Fatigue and Heritable Disorders of Connective Tissue guide in our shop – you can order your copy here in our shop for just £3.50 (plus postage, from £2 depending on your location).
The Hypermobility Syndromes Association’s Hampshire Group Leaders were present at the Love Your Bones annual conference.
They were incredibly busy and as first timers were impressed by the events organisation. Colin Beevor, Matron of Rheumatology for Portsmouth Hospitals is a huge inspiration and much respected by his patients, charity organisations and professionals alike.
Did you attend?
You don’t need to organise it all yourself – ask a friend to help out too! So why not hold a tea party for the HMSA?
How do I join and donate?
Simply click here on Virgin Money Giving to go to our event page where you can join for free by pressing “start fundraising” on the right of the screen.
Within 48 hours you will then also receive a confirmation email (remember to check your spam!) including bunting and invitations amongst other things to help you get started!
And also click on Tips and Instructions. These maybe helpful too.
And, there is a Competition too!
How do I enter?
Simply take a photograph which shows your “Hypermobili-Tea 4 Charity Event” at it’s best and post it on our Facebook wall or email it to us by clicking here and our judging panel will chose a lucky winner.* click on Terms and Conditions, below.
Once you have held your Tea Party, simply count up the donations and pay in at our ‘Virgin Money Giving’ Hypermobili-Tea event page above. Alternatively you can collect up your donations at the end of your tea party and post a cheque to: The Hypermobility Syndromes Association, Sovereign House, 22 Shelly Road, Worthing, West Sussex, BN11 1TU (cheques payable to “The Hypermobility Syndromes Association”).
If you have any questions regarding this event, please email Ben Cooper at the HMSA office by clicking here.
Closing date is the 31st August 2015