Latest News

Rare disease in Paediatrics Conference

Posted By HMSA Social Media Coordinator, February 9, 2016

Sorry you have no rights to view this post!

This month’s theme is Physio for Life

Posted By HMSA Social Media Coordinator, February 7, 2016

Physiotherapy is an important part of managing hypermobility syndromes, but it is easy to assume that it is only for managing acute injuries. The reality is that physiotherapy is an ongoing process which can help to prevent or minimise injury. Finding the right therapist is important, as is keeping up with the exercises at home and not just at your appointments. Try to stay positive about the experience, expecting that at first your symptoms might feel worse, but bear in mind that likely this is due to unfamiliar movements.

So tell us which physiotherapy exercises have helped you and with which aspects of your Hypermobility? You can join in the discussion on Facebook by clicking here


Local group leaders wanted

Posted By HMSA Social Media Coordinator,

The HMSA is a dynamic charity which provides a network of support groups throughout the UK. All our Group Leaders are trained and have clear DBS’s. The HMSA is proud that our groups are recommended by many hospitals and individual professionals because of our positive ethos and the dedication of our Group Leaders.

We are also looking for more volunteers to run local groups. Even if there is a group running in your area, don’t be afraid to apply. We are looking out for deputy group leaders also.

To volunteer for the HMSA charity you will need to be a full member and go through an interview process. You will be up and running in no time :)

Fancy volunteering? Email our group leader coordinator Catherine on

‪#‎LoveYourGloves‬ ‪What colour are your digits?

Posted By HMSA Social Media Coordinator, February 2, 2016

Our social media deputy and campaign coordinator Flick McLuckie is taking a well deserved break, warming up her fingers with a hot cup of coffee to hang onto and flexing fingers into the pink! What colour are your digits? ‪#‎LoveYourGloves‬ ‪#‎Raynaudsawarenessmonth‬


flick gloves

#LoveYourGloves #RaynaudsAwarenessMonth

Posted By HMSA Social Media Coordinator,

As we mentioned this morning on our Marfan syndrome post, February is also Raynaud’s awareness month, so here’s a timely reminder to ‪#‎LoveYourGloves‬ from our Social Media Coordinator Kim, who knows ALL about keeping warm since she works on the ice.

She’s sporting four layers to keep her core temperature up and those mittens are over a pair of thermal gloves!

So, how are you lot handling the cold(ish) snap? Everyone prepared for colder weather if it comes? Has anyone already succumbed to chilblains, and what are your top tips for managing them?

gloves ice kim

The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.