Latest News

Membership Offer Launch

Posted By Alan Hakim, October 2, 2015

HMSA membership offer

If you join or renew by the 9th October only then you will receive a free pen and HMSA pin badge worth £4.25. This applies to any full HMSA membership. Signing up or renewing through our shop is so simple, just visit, choose the membership button, and from the drop down box choose the membership option you require.

Alternatively, you can email with your details and Abi will be more than happy to take a debit or credit card payment from you.

Please bear in mind that nobody under 16 years of age can have a single adult membership due to our safeguarding policy.

This offer will end on the 9th October 2015.

Please also note that this offer is separate to the Journal offer. As many of you may be aware the next edition of the HMSA journal is due out in October. To receive this you must be a current member of the HMSA and either have joined or renewed a lapsed membership by the 1st October.

HMSA School Campaign

Posted By Donna Wicks, October 1, 2015

Many parents, teachers and schools have contacted the Hypermobility Syndromes Association with questions about the hypermobility syndromes (also known as Heritable Disorders of Connective Tissue). Questions range from basic concerns for the safety of the student, to questions about accommodations that meet the needs of students. At the HMSA we decided to do something to address this need and created the HMSA publication, ‘The hypermobile child – a guide for schools’, an invaluable resource for those with Marfan syndrome, Osteogenesis imperfecta, Ehlers-Danlos syndrome, Joint Hypermobility syndrome and Stickler syndrome.


What is the plan?

The HMSA would like to see every school in the country equipped with a copy of this highly acclaimed, comprehensive, 32 page guide, but we really need your help to make it happen.

As a charity the HMSA receive little outside funding, we are, instead, reliant on donations and membership fees to fund our work. We are already working hard on your behalf, implementing education programmes for schools, colleges and universities around the country and providing support for parents of children in education through our Education Support Group, but, with limited resources, we can only do so much and many children with hypermobility syndromes are still struggling at school every day.

The HMSA is asking for your help to change this, by carrying out one or more of the following:

Option 1: Instead of buying one school guide for your child’s school, please buy two and donate the spare to another school near you. By doing this you will be raising awareness within the education system and helping other children who may be struggling at school – visit our shop at:

Option 2: Make a donation of £5 – by texting ‘HMSA13 5’ to 70070. The money raised will to go towards sending our education team into schools, colleges and universities across the country.

Option 3: Make a donation of £4 – by texting ‘HMSA13 4’ to 70070. The money raised will allow us to donate HMSA school guides to schools with whom our education team are working, ensuring a much needed source of information and advice is held on school records and understood by staff.

Please, help us to make a huge difference to so many children’s lives.


It’s ‪#‎invisibleillness‬ awareness week! #Marfansyndrome

Posted By Kim Clayden, September 30, 2015

Marfans 1The HMSA supports patients and families across the spectrum of the Heritable Disorders of Connective Tissue (HDCT), Marfan syndrome being one of them. So here is some information for you to help raise awareness.






#Invisibleillness awareness week is upon us!

Posted By Kim Clayden, September 29, 2015

HMSA invisible illness awareness week 2Join us for ‪#‎invisibleillness‬ awareness week by spreading the word! Do you have a Heritable Disorder of Connective Tissue? Share your stories with us by submitting them to






Health Professional Course in Joint Hypermobility Syndrome, NCORE, Derby Hospitals NHS Foundation Trust, 29th January 2016

Posted By Alan Hakim, September 26, 2015

On the 29th Jan ’16 The National Centre of Rehabilitation Education (NCORE), Derby Hospitals NHS Foundation Trust is hosting a 1-day course on the assessment and management of Joint Hypermobility Syndrome / Ehlers-Danlos Syndrome – Hypermobility Type.

The course, offering 6.25 hours CPD and facilitated by Dr Jane Simmonds*, will be suitable for physiotherapists, occupational therapists, podiatrists, dieticians and psychologists; will cover the spectrum of those affected, from children to adults, athletes, to the complex and vulnerable; and, will provide opportunity to discuss and reflect upon clinical practice and apply evidence-based approaches.

For more information click on this link,, then click on ‘events’ on the webpage, scroll down to the 29th January, and click on the event. The local contact in Derby is Anne Hardy, Clinical Specialist in Physiotherapy, Royal Derby Hospital on 01332 787050 or at


* Dr Jane Simmonds MCSP MMACP FHEA is a Clinical Specialist Physiotherapist, Hypermobility Unit, Hospital of St John and St Elizabeth, London; Senior Teaching Fellow University College London; and, Medical advisor to HMSA and EDS Support UK.





The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.
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