Latest News

Raise money for the HMSA with Sainsbury’s

Posted By HMSA Editorial Team, August 27, 2015

You could help us raise money for the HMSA every time you shop at a Sainsbury’s Supermarket or Sainsbury’s Local store.

“Give as you Live” has partnered with Sainsbury’s to bring you the Everyday Shopping Card – simply top it up online, shop instore at Sainsbury’s and 4% of your spend will be donated to us without any cost to you.

By supporting the HMSA in this way you will be helping us to maintain all our activities including our 7 day a week helpline, production of our information booklets, running of our social media and forums, and management of our website.

Please take a look at Sainsbury’s offer, and support the HMSA. To find out more and to request your Everyday Shopping Card visit

Please also consider registering with “Give as you Live”. It’s an online shopping website which turns a percentage of every penny you spend online at over 4,000 stores including Amazon, John Lewis and Debenhams, into a free donation to the charity. To find out more visit




HMSA Charity Mugs!

Posted By HMSA Editorial Team, August 2, 2015

Available in our shop these cheerful mugs are a great way to raise awareness in the workplace, or remind you to pace effectively at home.

These mugs are great for your daily tea and coffee! Or you’re thinking of running an event like the Hypermobili-TEA party (there’s still time!), what a perfect cuppa for your cake and chat.


The new HMSA Mugs are to sold to support the HMSA in their work in hypermobility syndromes, including Ehlers-Danlos Syndrome, Marfan Syndrome, Osteogenesis imperfecta, Pseudoxanthoma elasticum and Sticklers syndrome.
You can find the mugs here in our new shop

Scottish Members, step up!

Posted By HMSA Editorial Team, July 11, 2015

We have calls for participants in a couple of research studies from Glasgow Caledonian University to share with you all, one on proprioception requiring JHS and control candidates and the other on knee stability, which aims to develop computational tools to evaluate knee stability. For further information, participant requirements and contact details for each study please see the attached poster images.



CANCELLED: Taunton Family Programme and Information Day

Posted By HMSA Editorial Team, July 9, 2015

With regret, this event has been cancelled due to insufficient take up.

Our family programmes are very popular. With separate sessions for adults and children, the focus is on living positively with a hypermobility syndrome and how to actively manage our own conditions.
We are aiming to have them all over the UK. In recent months we have held them in Alton, Hampshire and also Swansea. We have had some fantastic feedback from those that attended.

Our next family programmme is in Taunton on August 15th 2015. To order tickets online and for more information check out our shop here.


Persistent Fatigue and Heritable Disorders of Connective Tissue

Posted By HMSA Editorial Team, July 2, 2015

One of the questions the HMSA are most frequently asked, is how to cope with persistent (chronic) fatigue. Produced by the HMSA, under the guidelines laid out in NHS England’s Information Standard, this guide aims to provide readers with a better understanding of its management. Due to popular demand (following publication in our journal) we’re very pleased to be offering the Persistent Fatigue and Heritable Disorders of Connective Tissue guide in our shop – you can order your copy here in our shop for just £3.50 (plus postage, from £2 depending on your location).

Cover: Persistent Fatigue and Heritable Disorders of Connective Tissue

The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.
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