Latest News

Kids and Teens – Positive achievements & Sports day

Posted By HMSA Social Media Coordinator, June 22, 2018

Last week we spoke about achievements, so I thought we could think about sporting achievements, in particular sport’s day… Which is probably relevant to all of our young people at the moment.

This year is my daughter’s first sports day post-diagnosis, and unfortunately not one she will be partaking in. My daughter actually really enjoys sports (as did I many years ago – well, apart from running!!!) but unfortunately, this year, injury is preventing her from taking part. She’s disappointed, and hating all the practice sessions where she sits and reads – despite the fact she loves reading.

So to counteract the disappointment and upset, we’re focussing on past sporting achievements, non-sporting achievements and generally working on her self-esteem, as it’s definitely taken a knock. We’ve done this by making sure she has a really good book to read(!) during practice lessons, making a really big deal out of a choir concert she just performed in, as well as pointing out her perseverance and courage.

How has sport’s day gone for you guys? And how do you deal with potential sitting on the side-lines? Any extra tips would be most helpful too.

Lara Compton – Social media volunteer

This month’s theme is Hobbies and Achievements!

Posted By HMSA Social Media Coordinator, June 15, 2018

This month’s theme is Hobbies and Achievements! Accomplishments, albeit within school, or within a hobby or sport, can mean so much more to our children living with hypermobility and/or a related co-morbidity. I know for one that my daughter has been pretty down at times over the past year. She’s had more injuries than I can count – but, when she got 94% in her LAMDA exam (drama) I was proud as punch, and so was she. Her face could have lit up the world that day. She also performed in a west-end theatre with her drama club a few years ago! We are extremely lucky that her club are so accommodating. She spent most of the autumn term on crutches, but they adapted the end of term show and very much followed her lead, and still do. I’m very interested to hear what hobbies and your children and teens do, and any accomplishments that have had you beaming ear to ear – I bet there’s a few unusual ones! 😊

Lara Compton – Social media Volunteer

HMSA’s Prize Draw Launch!

Posted By HMSA Social Media Coordinator, June 11, 2018

Here at the HMSA Charity, we are launching a prize draw! To enter, simply spend over £5 exc postage between the 11th June to the 10th July to be automatically entered. A winner will be chosen at random and will be annouced on the 11th July! You will have the oppotunity to win this full set of ergonomic gardening tools which are worth £49.99!

Good luck everyone! You can find our online shop to enter here:

Appointment of a new trustee to the HMSA Board, Hannah Ensor

Posted By HMSA Social Media Coordinator, June 8, 2018

The HMSA are pleased to announce the appointment of a new trustee to the HMSA Board. Many of you will already know of Hannah Ensor, our current HMSA Youth Patron and I am sure that you will be delighted to hear that Hannah has now come onto the charity’s board of trustees.

“I’ll do my absolute best to do my part in helping this fabulous charity to flourish and continue their vital work in supporting people like me with hypermobility syndromes, and to support the staff and volunteers who achieve such an incredible amount.” – Hannah Ensor

We hope you will join us in congratulating Hannah in her additional role here within the HMSA Charity.

Kids & Teens – Distraction techniques – Lara Compton

Posted By HMSA Social Media Coordinator,
Following on from last week’s pacing theme, it’s clear that our children definitely need quite a few rest breaks and some chill-out time, albeit built in, or a disguised as a clever distraction!
How do your family spend these rest breaks? Obviously, watching TV is probably high up there for a lot of us, but I like to try and avoid TOO much screen time – it can make you feel a bit stir-crazy sometimes.
In our house, as I’ve mentioned in other posts, we are great lovers of adult colouring and dot-to-dot books. My eldest is also an avid reader, so often gets lost in fantasy for a while.
During school holidays I try to find activities that we can slot into a “rest day” that allow us to pace AND have fun – for example, last week the girls went to a slime workshop, which they loved, especially seeing as slime is one of the latest crazes.
I also treat the girls to a bath bomb every few weeks – they love the avid colours and smells, and you can even get ones that pop now. Lovely smells work well in our family for perking us up if we’re feeling a bit down too.
I’m sure there’s loads of other options, I know I’d love some extra ideas, as would most of us I should imagine. So, fire away!

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