Latest News

Posted By HMSA Editorial Team, March 26, 2015


Dr Alan Hakim, Chief Medical Advisor to the HMSA, is leaving his NHS clinical practice to take up an exciting opportunity in NHS Commissioning. Letters have gone out to his existing NHS patients explaining that he is leaving NHS clinical practice. Dr Hakim will continue to have a private clinic at The Hypermobility Unit, St John’s and St Elizabeth’s, London.

Dr Hakim will remain as the Chief Medical Advisor and a Trustee to the HMSA and explains his new role in the HMSA Journal next month.

Fatigue and Health-related Quality of Life in EDS – A Patient Survey

Posted By Alan Hakim, March 24, 2015

The HMSA is pleased to endorse a research project being undertaken by Elaine Byrne, Physiotherapist, as part of a Masters Degree at the University of Hertfordshire. Take a look at the simple check list in the poster below, and if you meet the criteria, as many Members will, why not take the survey by clicking on the weblink provided.

Elaine Byrne Research


The study is being conducted by Elaine Byrne B.Sc MCSP MACP a qualified Chartered Physiotherapist who is undertaking this project as part of a Master’s degree at the University of Hertfordshire.

If you have any queries please contact: Project supervisor: Dionne Ryder MSc. MCSP MMACP Senior Lecturer:

Ethical approval granted by: University of Hertfordshire – School of Health & Human Sciences. APPROVAL NO: aHSK/PG/UH/00335


The HMSA are on YouTube!

Posted By HMSA Editorial Team, March 18, 2015

The newest video is from our Social Media Coordinator Kim Clayden. It’s a little intro to her and her plans for the HMSA’s channel.

You can see her latest video here :


HMSA Residential Weekend & Patient Conference 2016 Dates Confirmed!

Posted By HMSA Editorial Team, March 10, 2015

***The next HMSA residential weekend dates have been confirmed!!! ***

The dates are from 4th -7th August 2016.

It will be held at the same venue as last time. The Hilton, St Georges Park, Burton-Upon-Trent, home of the National Football Centre.

No bookings are being taken just yet, please save the date and watch this space for when you can book

So exciting! :)

HMSA residential

Do you or someone you know have Stickler Syndrome?

Posted By HMSA Editorial Team, March 8, 2015

If so the HMSA would love to hear from you.

Please contact for further details. Or call our helpline 03330 116 388 and one of our staff will be happy to assist you.


The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.