Latest News

Love Your Bones!

Posted By HMSA Editorial Team, June 24, 2015

The Hypermobility Syndromes Association’s Hampshire Group Leaders were present at the Love Your Bones annual conference.

LoveYourBonesThey were incredibly busy and as first timers were impressed by the events organisation. Colin Beevor, Matron of Rheumatology for Portsmouth Hospitals is a huge inspiration and much respected by his patients, charity organisations and professionals alike.

Did you attend?

Hypermobili-Tea 4 Charity 2015 (21st – 28th June)

Posted By HMSA Editorial Team, June 23, 2015

ImageIt’s back for 2015! ‘Hypermobili-Tea 4 Charity’ will be taking place between 21st – 28th June 2015 (but you can always chose a date which is more convenient for you!)

You don’t need to organise it all yourself – ask a friend to help out too! So why not hold a tea party for the HMSA?

How do I join and donate?
VMG_Logo_StkSimply click here on Virgin Money Giving  to go to our event page where you can join for free by pressing “start fundraising” on the right of the screen.

Within 48 hours you will then also receive a confirmation email (remember to check your spam!) including bunting and invitations amongst other things to help you get started!

And also click on Tips and Instructions. These maybe helpful too.

And, there is a Competition too!

How do I enter?
Simply take a photograph which shows your “Hypermobili-Tea 4 Charity Event” at it’s best and post it on our Facebook wall or email it to us by clicking here and our judging panel will chose a lucky winner.* click on Terms and Conditions, below.

What can I win?
Prize2015
You could win a beautiful floral cake stand from Joules at John Lewis – the perfect show-piece for your next baking season!

Afterwards
Once you have held your Tea Party, simply count up the donations and pay in at our ‘Virgin Money Giving’ Hypermobili-Tea event page above. Alternatively you can collect up your donations at the end of your tea party and post a cheque to: The Hypermobility Syndromes Association, Sovereign House, 22 Shelly Road, Worthing, West Sussex, BN11 1TU (cheques payable to “The Hypermobility Syndromes Association”).

Questions?
If you have any questions regarding this event, please email Ben Cooper at the HMSA office by clicking here.

Closing date is the 31st August 2015

*Terms & Conditions

 

 

Medical Article: Review of Neurovisceral Phenotypes in the Expression of Psychiatric Symptoms

Posted By HMSA Editorial Team, June 12, 2015

This review by Dr Jessica Eccles, explores the proposal that vulnerability to psychological symptoms, particularly anxiety, originates in constitutional differences in the control of bodily state, exemplified by a set of conditions that include joint hypermobility, Postural Tachycardia syndrome and vasovagal syncope. It is a follow on from her 2012 study, which demonstrated that structural differences in key emotion processing brain regions (notably the amygdala) can be seen on brain imaging of those who are hypermobile.

You can also read the ongoing discussion of this subject and add your own thoughts on our free forum: http://www.hypermobility.org/forum/viewtopic.php…

Neurovisceral phenotypes in the expression of psychiatric symptoms

Professional Conference; Podopaediatrics Special Interest Group Annual Conference 3rd July 2015

Posted By Donna Wicks, June 5, 2015

 

Podopaediatrics Special Interest Group Annual Conference Friday 3rd July 2015

Professionals interested in podopaediatrics may wish to attend the Podopaediatrics Special Interest Group’s Annual Conference.

This is conference is centred around hypermobility and hypermobility syndromes. The HMSA’s trustee and Educational Coordinator, Mrs Jenny Parris will be attending and speaking about the HMSA.

Medical Advisor to the HMSA, Dr Jane Simmonds, will also be speaking about physiotherapy and the hypermobile child.

 ‘Learn, understand and apply in practice.’

 

Venue; Holiday Inn Hotel, City Centre, Birmingham

Schedule of Day.

09.00–09.40:     Registration and welcome

09.40–1040:      Podiatric referral of the Hypermobile child – Mr James Welch Director and Lead Podiatrist – Ablefeet Ltd

10.40–1100:      Break

11.00–11.30:     Podiatric Assessment and treatment – Mrs Amanda Walker – The Gait Lab

 11.30–12.30:    A Physiotherapy perspective in the Hypermobile child – Dr Jane Simmonds Senior Teaching Fellow, UCL, Institute of Child Health

12.30 –1.15:      Lunch

1.15 –2.30:        Pain Management – Mrs Jill Maxwell Advanced Physiotherapist in Paediatric Rheumatology Birmingham Children’s Hospital

2.30–3.00:         The work of the Hypermobility Syndrome Association – Jenny Parris HMSA

3.00–3.20:         Break

 3.20–4.20:         Case study to bring it all together – real life, followed by a practical exercise workshop

           Matthew Hill Specialist Podiatrist Lower Limb MSK and Biomechanics Stoke on Trent Trust and Nina Davies Senior   Podiatrist Leeds Trust

4.20 –4.30:        Closing Remarks Mr Simon Jones Chair Podopaediatrics Special Interest Group

4.30                   Close

Course fee is £100.00

simon.jones12@nhs.net

2015 conference programme

Attention all you would-be concert goers – sign up today!

Posted By Donna Wicks, June 4, 2015

Why_Not_People_Introducing_Our_Founder_2

77 per cent of young disabled people believe that booking tickets for live music puts them at a substantial disadvantage to non-disabled people. Television presenter, radio presenter and model, Jameela Jamil aims to change this and has recently launched the music company Why Not People? a new organisation that will host live events for people with disabilities.  The HMSA has been working with Why Not People? to help make this happen and are thrilled to be able to offer you free membership. 

Membership to ‘Why Not People?’, will give you the opportunity to purchase tickets for events such as the up coming Launch Event, featuring acts such as Tinie Tempah and Flawless, which will be held on 1 July 2015.

Confirmed acts for future events include Coldplay, Ed Sheeran, Mark Ronson, and James Blake.

cold_playedsheeranmark_ronsonjames_blake

Jameela explains: “At Why Not People? events, you will not be cordoned off at the side, you wont be separated from friends and family, you’re going to be right in the middle in all of the action along with everyone else, watching our world class performers on stage. For those using wheelchairs we will have a seating structure; three seats and then a wheelchair – three seats and then a wheelchair – so you can bring up to three of your mates and two wheelchair users could be next to each other – it’s just collapsible seating basically. “This is so long overdue and I’m so excited that it might actually happen, which is why we need your help.’

sophie_morganSpokesperson, Sophie Morgan, said: ‘We are really keen to make sure that we extend our invitation of membership to as many people with disabilities as possible, and hope you can help us to reach people with hypermobility syndromes.  We intend to make the experience as extraordinary as possible for everyone with a disability, and are taking advice from people in every sector and with every impairment we can! Accordingly, we would be extremely grateful if you could suggest a way for us to get advice on how best to better the experience for people with heritable disorders of connective tissue, as we are by no means experts in catering for every disability and would really like to make sure we get it right.’

Live events will accommodate those with both physical and sensory impairments. In connection with this, the company will work to introduce new technologies such as the SubPac, which transfers low audio frequencies onto the body, reinventing the way music is experienced.

Why Not People?’ is a members only club, creating a social community where users can receive exclusive offers and advice. You can only become a member if you are living with a disability and then you can purchase tickets and bring everyone along with you. The more people who register, the more we can understand how we can enhance the experience at the events for each member and their friends”

Jameela was inspired to start ‘Why Not People?’ by her friend Charlie, who she has known since she was six years old. Jameela explains: “Charlie and I have been friends our whole lives and yet our experiences of growing up, especially socially, were so different because he was living with a disability.  I cannot live any longer in a world that has so many amazing technological advances and yet we can’t seem to make the basic changes that it takes to accommodate such a huge and important portion of society.”

“It is unbelievable that a company like this even needs to exist in this day and age, but if it has to start with us, then so be it.”

To find out more go to:

www.whynotpeople.com


Disclaimer
The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.
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