One of the questions the HMSA are most frequently asked, is how to cope with persistent (chronic) fatigue. Produced by the HMSA, under the guidelines laid out in NHS England’s Information Standard, this guide aims to provide readers with a better understanding of its management. Due to popular demand (following publication in our journal) we’re very pleased to be offering the Persistent Fatigue and Heritable Disorders of Connective Tissue guide in our shop – you can order your copy here in our shop for just £3.50 (plus postage, from £2 depending on your location).
The Hypermobility Syndromes Association’s Hampshire Group Leaders were present at the Love Your Bones annual conference.
They were incredibly busy and as first timers were impressed by the events organisation. Colin Beevor, Matron of Rheumatology for Portsmouth Hospitals is a huge inspiration and much respected by his patients, charity organisations and professionals alike.
Did you attend?
You don’t need to organise it all yourself – ask a friend to help out too! So why not hold a tea party for the HMSA?
How do I join and donate?
Simply click here on Virgin Money Giving to go to our event page where you can join for free by pressing “start fundraising” on the right of the screen.
Within 48 hours you will then also receive a confirmation email (remember to check your spam!) including bunting and invitations amongst other things to help you get started!
And also click on Tips and Instructions. These maybe helpful too.
And, there is a Competition too!
How do I enter?
Simply take a photograph which shows your “Hypermobili-Tea 4 Charity Event” at it’s best and post it on our Facebook wall or email it to us by clicking here and our judging panel will chose a lucky winner.* click on Terms and Conditions, below.
Once you have held your Tea Party, simply count up the donations and pay in at our ‘Virgin Money Giving’ Hypermobili-Tea event page above. Alternatively you can collect up your donations at the end of your tea party and post a cheque to: The Hypermobility Syndromes Association, Sovereign House, 22 Shelly Road, Worthing, West Sussex, BN11 1TU (cheques payable to “The Hypermobility Syndromes Association”).
If you have any questions regarding this event, please email Ben Cooper at the HMSA office by clicking here.
Closing date is the 31st August 2015
This review by Dr Jessica Eccles, explores the proposal that vulnerability to psychological symptoms, particularly anxiety, originates in constitutional differences in the control of bodily state, exemplified by a set of conditions that include joint hypermobility, Postural Tachycardia syndrome and vasovagal syncope. It is a follow on from her 2012 study, which demonstrated that structural differences in key emotion processing brain regions (notably the amygdala) can be seen on brain imaging of those who are hypermobile.
You can also read the ongoing discussion of this subject and add your own thoughts on our free forum: http://www.hypermobility.org/forum/viewtopic.php…
Professionals interested in podopaediatrics may wish to attend the Podopaediatrics Special Interest Group’s Annual Conference.
This is conference is centred around hypermobility and hypermobility syndromes. The HMSA’s trustee and Educational Coordinator, Mrs Jenny Parris will be attending and speaking about the HMSA.
Medical Advisor to the HMSA, Dr Jane Simmonds, will also be speaking about physiotherapy and the hypermobile child.
‘Learn, understand and apply in practice.’
Venue; Holiday Inn Hotel, City Centre, Birmingham
Schedule of Day.
09.00–09.40: Registration and welcome
09.40–1040: Podiatric referral of the Hypermobile child – Mr James Welch Director and Lead Podiatrist – Ablefeet Ltd
11.00–11.30: Podiatric Assessment and treatment – Mrs Amanda Walker – The Gait Lab
11.30–12.30: A Physiotherapy perspective in the Hypermobile child – Dr Jane Simmonds Senior Teaching Fellow, UCL, Institute of Child Health
12.30 –1.15: Lunch
1.15 –2.30: Pain Management – Mrs Jill Maxwell Advanced Physiotherapist in Paediatric Rheumatology Birmingham Children’s Hospital
2.30–3.00: The work of the Hypermobility Syndrome Association – Jenny Parris HMSA
3.20–4.20: Case study to bring it all together – real life, followed by a practical exercise workshop
Matthew Hill Specialist Podiatrist Lower Limb MSK and Biomechanics Stoke on Trent Trust and Nina Davies Senior Podiatrist Leeds Trust
4.20 –4.30: Closing Remarks Mr Simon Jones Chair Podopaediatrics Special Interest Group
Course fee is £100.00