Latest News

It’s Back! …The HMSA’s ‘Do A Mile’ for EDS Awareness Month

Posted By Ben Cooper, April 26, 2015

Following the success and popularity of last year’s event – we’re delighted to announce that The HMSA’s “Do a Mile for EDS Awareness Month” is back again for a second year!

Whether you want to walk or run, skip or swim, cycle or complete the mile any other way you can think of; the aim is to get the entire HMSA community together to complete enough miles to get between all the HMSA Local Support Group’s throughout the UK!

How Long have I Got?
It doesn’t matter how long it takes to do your mile, and whether you want to do 10 miles on one run, or a mile throughout the month walking to work…the idea is to get everybody involved. The event runs throughout the whole of May.

How do I Join?
It’s simple! By going to our Virgin Money Giving Event Page (click here) and pressing the ‘Start Fundraising’ button on the right of the page, you will be taken through a process where you can sign-up to participate in the event, and create a page to collect your donations online as well.

Within 2 days you will then also receive an email (please remember to check your spam!) with log-in details and a link to our specially designed website where you can input your miles onto our leader board.

What do I Get?
For light entry (£4.90) you will get access to our website where you can input your completed miles and be in with a chance of winning one our 2 leaderboard prizes; alternatively for just £19.90 for standard entry, as well as the above you will also receive a Fundraising Pack in May (containing a T-Shirt, other fundraising goodies and a certificate) and entry into our main prize draw.

What can I win?
We have 3 prize categories for this event – the most miles completed in, the individual who can complete a mile in the most unique way and there’s also a special prize draw for entrants who opt for our main  sign-up option.

If anybody has any questions regarding this event, please contact Ben by clicking here.

Good luck!

Hypermobili-Tea 4 Charity 2015 (21st – 28th June)

Posted By Ben Cooper, April 23, 2015

ImageIt’s back for 2015! ‘Hypermobili-Tea 4 Charity’ will be taking place between 21st – 28th June 2015 (but you can always chose a date which is more convenient for you!)

You don’t need to organise it all yourself – ask a friend to help out too! So why not hold a tea party for the HMSA?

How do I join and donate?
VMG_Logo_StkSimply click here on Virgin Money Giving  to go to our event page where you can join for free by pressing “start fundraising” on the right of the screen.

Within 48 hours you will then also receive a confirmation email (remember to check your spam!) including bunting and invitations amongst other things to help you get started!

And also click on Tips and Instructions. These maybe helpful too.

And, there is a Competition too!

How do I enter?
Simply take a photograph which shows your “Hypermobili-Tea 4 Charity Event” at it’s best and post it on our Facebook wall or email it to us by clicking here and our judging panel will chose a lucky winner.* click on Terms and Conditions, below.

What can I win?
You could win a beautiful floral cake stand from Joules at John Lewis – the perfect show-piece for your next baking season!

Once you have held your Tea Party, simply count up the donations and pay in at our ‘Virgin Money Giving’ Hypermobili-Tea event page above. Alternatively you can collect up your donations at the end of your tea party and post a cheque to: The Hypermobility Syndromes Association, Sovereign House, 22 Shelly Road, Worthing, West Sussex, BN11 1TU (cheques payable to “The Hypermobility Syndromes Association”).

If you have any questions regarding this event, please email Ben Cooper at the HMSA office by clicking here.

Closing date is the 31st August 2015

*Terms & Conditions



HMSA volunteer get’s a grant to help give her more independence!

Posted By HMSA Editorial Team, April 17, 2015

Our very own HMSA volunteer Becki Stott get a wonderful gift of independence!

News article

See the full article here:

Looking for a Local group meeting?

Posted By HMSA Editorial Team,

Fancy meeting people from your local area? Here’s the next lot of meeting dates for your diary:

Peterborough group Aug 2014

Burton local meeting – Saturday 18th April at 1pm
Cardiff local meeting – Saturday 18th April at 2pm
Essex local meeting – Saturday 18th April at 2pm
Rochdale local meeting – Saturday 18th April at 2pm
Peterborough local meeting – Saturday 18th April at 3pm
Kent local meeting – Wednesday 22nd April at 7pm
Plymouth local meeting – Saturday 25th April at 12:30pm
Liverpool local meeting – Saturday 25th April at 1pm
Hampshire local meeting – Sunday 26th April at 2pm
Swindon local meeting – Sunday 26th April at 2pm

If you would like to attend any of these meetings please contact the volunteer group leader by clicking the link below and then onto the event you would like to attend. You can email the group leader for venue details.
For more events and what is going on in the future, click the link below:

HMSA T-shirt Giveaway

Posted By HMSA Editorial Team, April 15, 2015



We are launching our new HMSA T-shirts by doing a giveaway!
All you have to do to be entered is ‘like’ and comment with where you would wear the HMSA T-shirt to help raise awareness. The facebook post can be found here:

This competition will run until we hit 16K Facebook likes or until 8PM on the 30th April, which ever comes first! HMSA staff, volunteers and their families may enter for fun, but won’t be eligible to win. :)

You don’t have to but sharing is caring – Good luck!

The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.