Latest News

‪#‎LoveYourGloves‬ ‪What colour are your digits?

Posted By HMSA Social Media Coordinator, February 2, 2016

Our social media deputy and campaign coordinator Flick McLuckie is taking a well deserved break, warming up her fingers with a hot cup of coffee to hang onto and flexing fingers into the pink! What colour are your digits? ‪#‎LoveYourGloves‬ ‪#‎Raynaudsawarenessmonth‬

 

flick gloves

#LoveYourGloves #RaynaudsAwarenessMonth

Posted By HMSA Social Media Coordinator,

As we mentioned this morning on our Marfan syndrome post, February is also Raynaud’s awareness month, so here’s a timely reminder to ‪#‎LoveYourGloves‬ from our Social Media Coordinator Kim, who knows ALL about keeping warm since she works on the ice.

She’s sporting four layers to keep her core temperature up and those mittens are over a pair of thermal gloves!

So, how are you lot handling the cold(ish) snap? Everyone prepared for colder weather if it comes? Has anyone already succumbed to chilblains, and what are your top tips for managing them?

gloves ice kim

Logo misuse – Copyright law

Posted By HMSA Social Media Coordinator,

Earlier this week we brought to your attention the importance of checking that fundraisers using our name are in fact authorised to do so after an incident in which some of our supporters ‘donated’ money to an individual (not known to us) who neither passed on the funds raised, nor sent out the items promised.
Today we find it necessary to remind you that while use of petition websites to raise awareness of the hypermobility syndromes is your right and an admirable goal, using the HMSA website, logo and intellectual property without our consent violates copyright law and can in fact have a negative impact on the work we’re doing with medical professionals and representatives of the health services to promote awareness and secure more effective treatment for patients with the syndromes. We are always willing to consider supporting a campaign or help with the creation of a petition, please contact us on info@hypermobility.org if you’d like our assistance.
Please note that while we appreciate that the intent is to help our cause, unauthorised use of our name can in fact damage it, so for these and other legal reasons we cannot allow use of our property without authorisation and will be forced to take action where appropriate when our material is used improperly.

Latest YouTube Vlog by Danielle Broad HMSA official Vlogger

Posted By HMSA Social Media Coordinator,

Hi everyone!
Our next Vlog from Danielle is here! Danielle discusses what she uses around the kitchen to make cooking and preparing food more manageable.

What little tips do you have? I have adaptive kitchen knives but they can be expensive. Do you have any tips additional to Danielle’s suggestions? – Kim :)

 

 

#MarfansAwareness #KnowTheSigns

Posted By HMSA Social Media Coordinator,

Monday morning and a big shout out to our Marfan members, our friends on the other side of the pond are shouting ‪#‎MarfanAwareness‬ in an effort to make sure that the general public ‪#‎KnowTheSigns‬.

It’s going to be a busy month – between their campaign, Raynaud’s awareness month (more on that later, nippy out there – got your gloves?) and the Hypermobility Syndromes Awareness Week at the end of the month we’ve lots on.

How’s your February looking?

http://info.marfan.org/social-media-for-marfan-awareness-month

FBguitar marfans


Disclaimer
The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.
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