Latest News

Are you 18 years or older and interested in taking part in a study looking at the psychological and social impacts of chronic pain?

Posted By Alan Hakim, January 26, 2015

The HMSA is happy to endorse a study being undertaken through Edinburgh Napier University.  Alicia O’Neill is an undergraduate student from the School of Life, Sport & Social Sciences at the University. As part of her degree she is undertaking a research project entitled:

Life events and the Psychosocial Experience of Chronic Pain: a Qualitative study

The study will explore the psychosocial experience of Chronic Pain. Alicia is looking for volunteers to participate. You must be:

  • 18 years of age or older,
  • Living with chronic pain,
  • Had chronic pain for at least 6 months, and
  • Must not be pregnant at the time of interview

In taking part you will be asked a set of questions relating to your chronic pain and several life events you have experienced, and how you feel they might have influenced each other. The whole thing should take no longer than one hour and you do not have to answer a question that you do not wish. The interview will be recorded and then the recording deleted once it has been transcribed. You will also be free to withdraw from the study at any stage, without further questioning and without having to give a reason.

All data will be anonymised, and kept in a secure place to which only the researcher and her supervisor have access. The results may be published in a journal or presented at a conference.

If you would like to take part please contact Alicia at the address / email below. If you have any questions you may contact Alicia or her project supervisor, Dr Dickson.

Contact Details

Alicia O’Neill, School of Life, Sport & Social Sciences,  Edinburgh Napier University,  Sighthill Campus, Edinburgh EH11 4BN. Email: 40065679@live.napier.ac.uk

Dr. Adele Dickson, School of Life, Sport & Social Sciences, Edinburgh Napier University, Sighthill Campus, Sighthill Court, Edinburgh EH11 4BN. Email: 40065679@live.napier.ac.uk                    Tel: (0131) 455 5345

If you would like to contact an independent person, who knows about this project but is not involved in it, you are welcome to contact Dr Barbara Neades, Convenor of Faculty Research Ethics Approval Group. Her contact details are:

Dr Barbara Neades, Senior Lecturer, Faculty of Health, Life & Social Sciences; Edinburgh Napier University, Sighthill Campus, Sighthill Court, Edinburgh EH11 4BN. (tel: (0131) 455 5315, Email: b.neades@napier.ac.uk)

 

Calling all Men – an opportunity to take part in a research project.

Posted By Alan Hakim, January 25, 2015

Want to take part in research investigating the relationship between mental health symptoms and the body?

The HMSA is pleased to endorse a research project looking at the relationship between mental health symptoms and the body. The study is being undertaken through the University of Sussex and will last approx. 2 hours and will involve completing some tasks on the computer whilst having your heart rate and blood pressure recorded.  We will also ask you to complete some questionnaires. You will be reimbursed for your time. This project is a collaboration between the Sussex Partnership NHS Trust & Brighton and Sussex Medical School (BSMS).

The research team are seeking male volunteers aged 18 to 65.

If you are interested please contact: Dr Jessica Eccles

j.eccles@bsms.ac.uk      01273 873818

 

HMSA’s Professional Members -Blackpool Training Hypermobility Masterclass

Posted By Donna Wicks, January 24, 2015

ACTION FOR DISABILITY AND WORK UKProfessionals with an interest in hypermobility syndromes can attend a Hypermobility Masterclass in Blackpool on 27th February 2015.

The aim of the Masterclass is to;
-To present current perspectives and service development opportunities in relation to Joint Hypermobility
Syndrome / Ehlers Danlos Syndrome – Hypermobility Type.
-The master class will cover the spectrum of those affected; from children to adults and relevant
comorbidities.

Who should attend:
The Master Class is intended for health professionals including consultants, specialist trainees in rheumatology, as well as peadiatrics, GP’s, physiotherapists, occupational therapists, and any health professional who wish to advance their knowledge and understanding of hypermobility and the Joint Hypermobility Syndrome/Ehler-Danlos Syndrome-Hypermobility type.

Date – 27 February 2015
Time – 10:00am-4:30pm

Venue; The De Vere Hotel, East Park Drive, Blackpool

For more details and to book a place visit:
www.eventbrite.co.uk/e/hypermobility-masterclass-tickets-14079418921

flyer hypermobility master class

HMSA Hampshire Family Programme and Information day

Posted By HMSA Editorial Team, January 23, 2015

**Exciting Announcement! :D**

Do you have a child with one of the hypermobility syndromes listed on the poster?

Then come along to our Family Programme and Information day in Hampshire on the 21st March 2015 from 10am to 4pm.

Spaces are limited, so booking in advance is a must.
All the information you need is on the poster, the address, how to book and how much are tickets etc. Ticket prices include lunch.

We hope to see you there! :)

HMSA Hampshire Family Programme

New HMSA Contact Details

Posted By HMSA Editorial Team, January 19, 2015

Helpline

Please note we have a new Helpline telephone number:

03330 116 388 

 

General Enquiries

All postal enquiries (with the exception of membership paperwork) should be sent to our office address:

Sovereign House, 22 Shelley Road, Worthing, West Sussex, BN11 1TU

 

Membership Applications/Renewals

Postal membership applications should be sent to:

HMSA Membership, 49 Orchard Crescent, Plymouth, PL9 7NF

 

Emails

We’re aware that some of our members have not been receiving information about renewals from our Membership Team. You can update your information, or check that we have the correct address, telephone and email details for you by emailing our Membership Secretary here

Please also check your spam folder and mark as ‘Not Spam’ any mistakenly trashed messages, adding our domain @hypermobility.org to your allowed senders list if necessary.

 



Disclaimer
The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.