Latest News

HMSA volunteer get’s a grant to help give her more independence!

Posted By HMSA Editorial Team, April 17, 2015

Our very own HMSA volunteer Becki Stott get a wonderful gift of independence!

News article

See the full article here:

Looking for a Local group meeting?

Posted By HMSA Editorial Team,

Fancy meeting people from your local area? Here’s the next lot of meeting dates for your diary:

Peterborough group Aug 2014

Burton local meeting – Saturday 18th April at 1pm
Cardiff local meeting – Saturday 18th April at 2pm
Essex local meeting – Saturday 18th April at 2pm
Rochdale local meeting – Saturday 18th April at 2pm
Peterborough local meeting – Saturday 18th April at 3pm
Kent local meeting – Wednesday 22nd April at 7pm
Plymouth local meeting – Saturday 25th April at 12:30pm
Liverpool local meeting – Saturday 25th April at 1pm
Hampshire local meeting – Sunday 26th April at 2pm
Swindon local meeting – Sunday 26th April at 2pm

If you would like to attend any of these meetings please contact the volunteer group leader by clicking the link below and then onto the event you would like to attend. You can email the group leader for venue details.
For more events and what is going on in the future, click the link below:

HMSA T-shirt Giveaway

Posted By HMSA Editorial Team, April 15, 2015



We are launching our new HMSA T-shirts by doing a giveaway!
All you have to do to be entered is ‘like’ and comment with where you would wear the HMSA T-shirt to help raise awareness. The facebook post can be found here:

This competition will run until we hit 16K Facebook likes or until 8PM on the 30th April, which ever comes first! HMSA staff, volunteers and their families may enter for fun, but won’t be eligible to win. :)

You don’t have to but sharing is caring – Good luck!

Participate in a Study of Proprioception (position awareness) in Women with JHS – At Glasgow Caledonian University

Posted By Alan Hakim, March 29, 2015

Prorioception StudyThe HMSA is pleased to endorse a study being undertaken by Nicole Greidanus and Cassandra Russell, second year MSc. Physiotherapy students at Glasgow Caledonian University.

They are studying aspects of proprioception, which is the body’s system for determining its movement and position. The aim is to determine if multiple joints in a person’s body have a similar ability to detect movement and position in both healthy young adults and young adults with Joint Hypermobility Syndrome.

To take part you will need to be able to attend the Human Performance Laboratory at Glasgow Caledonian University. In taking part you will be asked to complete a brief questionnaire on physical activity and joint mobility, the researchers will measure your height and weight, and then undertake proprioception tests. To assess your proprioception, the researchers will use a machine called “Biodex system 4 pro” shown in the image above.

To find out more about the study and to get involved contact the research team by:

Telephone: 01413318824 or

Email: Nicole Greidanus-  or

Cassandra Russell-

The HMSA Office. March 29th 2015


Fatigue and Health-related Quality of Life in EDS – A Patient Survey – CLOSED

Posted By Alan Hakim, March 24, 2015

This study has closed. A Huge Thank You to everyone – the researchers received over 500 surveys from you!

The HMSA is pleased to endorse a research project being undertaken by Elaine Byrne, Physiotherapist, as part of a Masters Degree at the University of Hertfordshire. Take a look at the simple check list in the poster below, and if you meet the criteria, as many Members will, why not take the survey by clicking on the weblink provided.

Elaine Byrne Research


The study is being conducted by Elaine Byrne B.Sc MCSP MACP a qualified Chartered Physiotherapist who is undertaking this project as part of a Master’s degree at the University of Hertfordshire.

If you have any queries please contact: Project supervisor: Dionne Ryder MSc. MCSP MMACP Senior Lecturer:

Ethical approval granted by: University of Hertfordshire – School of Health & Human Sciences. APPROVAL NO: aHSK/PG/UH/00335


The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.