Latest News

Fatigue help please!!! #HMSAanonQ

Posted By HMSA Social Media Coordinator, August 1, 2018

I am really struggling to cope with the constant fatigue.

Have you got any suggestions on what I can try to help please? 


HMSA Answer: Fatigue is a common and often disabling finding in many musculoskeletal conditions. It is a very common concern in hypermobility disorders. Those with this type of fatigue will know that it is much more than the tiredness experienced after exercise or a busy day at work; it is often an overwhelming lack of energy that may appear after even the most minimal activity.

The cause for such profound symptoms is unclear and may be related to pain, autonomic dysfunction, and poor sleep patterns and sleep quality. Addressing these issues may help relieve the severity of the fatigue.

Having good sleep hygeiene routine in place, such as a good bed time routine, bluelight filters on your smartphones/tablets, hot bath before bed can help with getting a better quality of sleep. Pacing your day can be a huge benefit too. Too many difficult tasks in a day can drain you so making sure you swap with easier tasks and rest breaks in is important. Relaxation/meditation techniques can also help. You can also find a guide to fatigue in our online shop for a lot more in depth advice here


Do any of our followers have any great tips that helps reduce your fatigue? Let us know in the comments on our Facebook page 🙂 

Tips for Carers by Sophie Harvey

Posted By HMSA Social Media Coordinator, July 28, 2018
Being a carer can be tough. It’s hard to see someone you love suffer. I have been in the situation of both being a carer and a patient, so I have experience from both sides. I have learnt some things along the way and these are the things that I have found most helpful for me. 
One of them, is having something to just take my mind off caring for a bit, a way to recharge. For instance, a distraction like a hobby, sport, seeing a friend, or disappearing into a good book. Carers take on a lot of responsibility, so I think enjoying and engaging in things that can take my mind off caring for a while is important. I am of more use to the person I am caring for when I am recharged, rather than when I am exhausted or emotionally drained.
Another thing I have found useful for me is researching the condition. It can be scary seeing a loved one in pain and not knowing why it was happening or what I could do about it. However, researching the condition and understanding why things were happening and what sort of management techniques there are, helped take some of the distress and worry away from the situation.  
It was also vital for me to know that when the person I care for is grumpy or angry, the majority of time they are not angry or grumpy because of me. They are grumpy or angry because of the symptoms. I try to know when it’s the person talking and when it’s the symptoms talking.
Similarly, even though the illness is a big part of their lives, I try to see the illness and the person I care for, separately. I know that they are still just a person and try to talk about things other than illness and quality spend time together. Even if it’s just watching sitcoms together. Being a carer can be very serious, but I try to remember to laugh and not take all things so seriously all the time. As corny and as cheesy as it sounds, ‘Laughter is the best medicine’. I try to remember that and to spend quality time with the person I care for despite the illness.
When the person I care for is going through a rough time I tend to worry about them. However, when that happens I try to ask myself ‘What can I do about it?’. It’s a way of reducing the amount of worrying I do because if I know I have done everything in my control to help them, I am doing all I can. I can’t cure them but I can care for them. Sometimes the answer to my question ‘What can I do about it?’ simply means I could send them a message with a joke in it to cheer them up before a medical procedure, or make them a cuppa, or give them a hug when they’re having a rough day.
Other times when I don’t know what to do, I ask ‘How can I help?’. Even if the answer comes back ‘Just leaving me to rest’ asking that question makes me feel like I am doing everything within my power and control to help them, and that reduces the amount of worry I have. I am doing the best I can.
Listening is one of the most powerful and useful things my carer does for me. Just knowing they’re there for me makes a massive difference. Equally, when I put my carer hat on, having someone to listen to me and talk things through with is helpful in the same way, too.
Knowing that it doesn’t have to all be on my shoulders has also been important for me. Asking for help has been vital. Whether that’s asking for help from friends, family, neighbours, or professionals. Also, simplifying life a bit like occasionally, doing online grocery shopping, buying pre-cut veg, ready-made food, or asking someone to help with housework can help to take the strain off for a bit. It doesn’t always have to be all on my shoulders and I can ask for help if need be.
In addition, not being afraid to talk things through with the person I’m caring for is important. I used to avoid it because I didn’t want to worry them but just because they’re ill doesn’t mean I can’t talk to them about things. They know the situation and can help.
Letting at least one person at school or work know that I’m a carer has also been useful. This is because if something came up for example, if I missed a deadline and required an extension because I had to do something carer related, then they knew why. It saved me from having to explain it all from the beginning when something cropped up.
In conclusion, know that you are not alone, you’re doing your best, remember to laugh, enjoy life and ask for help if you need it. Also, keep going, you are doing so well.

HMSA announces Dr Phillip Bull as a new Trustee!

Posted By HMSA Social Media Coordinator, July 6, 2018

‘It is great to welcome Dr Bull to the board. His governance experience and knowledge base developed throughout his NHS career will be a significant benefit for the HMSA, as it moves forward with its plans for the next 5 years. Fantastic news!’ – Donna Wicks CEO

Dr Philip Bull, FRCP

Dr Bull trained at St Thomas’ Hospital Medical School and then undertook senior specialty training in both Rheumatology and Acute Medicine at a Westminster and Charing Cross Hospitals. He worked as Consultant Rheumatologist at East Kent Hospitals University Foundation Trust based at the William Harvey Hospital from 1990 to 2014. During that time he developed a major interest in joint hypermobility and also held a senior management role as Clinical Director for medical services from 1994 to 2010.

Dr Bull has brings  his particular experience in hypermobility spectrum disorder and service development as Deputy Chief Medical Advisor to the HMSA. With regards to his clinical practice ( private) these include two rheumatology clinics , at the ‘One Hospital’ in Ashford  and  also ‘The Chaucer Hospital’ in Canterbury.

Dr Bull is also involved in medical education , running a rheumatology syllabus for East Kent Hospitals  medical students and junior doctors as well as local GP’s , health professionals and patient groups.

Dr Bull is the clinical lead  for the Kent Hypermobility Network and works on a voluntary basis for the HMSA and also, as a hospital governor for East Kent Hospitals. He has a particular interest in the Alexander Technique and Mindfulness.

In his spare time , Dr Bull plays bass guitar in an acoustic rock band.

Dr Bull joined the HMSA’s medical advisory board in November 2016.


13 Sleeps until the holidays! Kids and Teens with Lara Compton

Posted By HMSA Social Media Coordinator,

My eldest met her new teacher yesterday, I must admit, it’s made me feel quite nervous – having to go through all of her needs again in September. And she’ll be in Year 6, so we’ll have to tackle the residential too.

These are only my fears, my daughter is as happy as Larry – so we must be doing something right.

She has a care plan, which is up to date, and I’ll definitely be ordering some more of the HMSA booklets for educators, particularly, as now our youngest has been diagnosed with hypermobility by my GP too – we already knew of course, it’s just formal now.

Both girls got glowing reports, and what struck me is their determination to keep going, despite the odds. I’d imagine that most of our children and young people come under that bracket, as do we as parents. Sometimes, I think we all play down this determination, as it becomes our normal – but I’d like to recognise it, in all of us today – well done all of you for keeping going through pain, injuries, exhaustion, hospital appointments, disappointments, and so much more!

And for now, we are going to continue counting down the days until we can turn off our alarms!! 13 sleeps for us! Woohoo!

– Lara Compton – Social media volunteer

Welcome along to this week’s #SelfCareSunday!

Posted By HMSA Social Media Coordinator, July 1, 2018

We usually use this time to relfect on the week just gone, how we did with our self care, pacing, self management ect.

This week, I would like to us to look forward…

How will you plan your week to ensure you give yourself some ‘me‘ time? I know a lot of us will feel guilty for wanting or needing time to ourselves, we really shouldn’t. Even if it is making sure you give yourself half an hour to have a long soak in a hot bath. I set reminders on my phone to ensure I do something I love. This helps with pain reduction and distraction techniques from pain. It could be anything from a bath, to meditation, deep muscle relaxation, pilates class, swimming etc. – Kim 🙂

The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.
Have no idea how lawsuit settlement loans work ? Consult the best settlement lenders in Toronto . Accessories to buy online across canada e juice make orders now! . car title loans NC