The Hypermobility Syndrome Association - hypermobility syndrome, bjhs, beighton, joint, hypermobility, minor, score, benign, ehlers-danlos, diagnostic, syndrome, laxity, ehlers, brighton, criteria, rheumatology, association, eds, minor criteria, major criteria, hms

The Hypermobility Syndrome Association (HMSA) is a charity run by and for people diagnosed with the Hypermobility Syndrome (HMS).

What we do:

The HMSA aims to provide support and information to those affected by the Syndrome and to promote knowledge and understanding within the medical community and the public at large.

We hope to assist sufferers to come to terms with the HMS and the distress that it can cause. The severity of the effects of HMS varies with the individual: some have few symptoms others are severely affected. HMS is an 'invisible illness' and because of this we can look well to the outside world but are often in severe pain. Moreover the nature of hypermobile joints combined with frail tissues means that we are prone to injury when performing simple everyday tasks. This opens us to skepticism, particularly by those in the medical profession who know little about HMS. The pain, stress and frustration can lead to depression: thus depression can often be mistaken as the cause of the illness, not a result of it.

We work closely with those in the medical community with a special interest in HMS. Through our newsletters we aim to provide members with updates on the developments and issues within the medical community. As patients we need as much current and useful information as is available.

In turn it is our aim to provide those in the medical community with information about living with HMS. We can provide valuable data for research just by working as group rather than as individuals. Working in a proactive and mutually beneficial relationship with the medical community, the HMSA acts as both a support group as well as a force for advocacy for those with HMS.

Need More Information?

If you would like further advice or information on either the HMSA or the Hypermobility Syndrome, please either write to us at:

enclosing a stamped self addressed envelope or use our feedback form. To become a member simply click here and complete the form.

Our telephone number (available from 9.00 am to 1.00 pm Monday to Friday and the first Saturday of every month) is 0845 3454465.

Want to help?

The Hypermobility Syndrome Association is financed by donations and the contributions it receives from members and is staffed by volunteers. (Annual accounts are available on request from the above address). If you feel that you can contribute to the charity either by making a donation or by volunteering your time or skills then we would be delighted to hear from you.

The information provided by the HMSA should not take the place of advice
and guidance from your own health-care providers. Material in this site is provided
for educational and informational purposes only. Be sure to check with your doctor before
making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and
has not necessarily been approved or endorsed by the medical advisors.

The information contained on this web site may not be published, broadcast or
otherwise distributed without prior written authorization.

To the HMSA web site.

Who are we:

What we do:

Need More Information?

Want to help?



HMSA Membership Medical Information Pain and Hypermobility HMS Resources HMSA Community Living with HMS Fundraising Kids & Teens	To the HMSA web site. Details of the 2008 Residential Weekend now released - click here for details! John O'Groats to Lands End (JOGLE) cycle ride for The HMSA - click here for details HMSA Polo Shirts available HERE Who are we: The Hypermobility Syndrome Association (HMSA) is a charity run by and for people diagnosed with the Hypermobility Syndrome (HMS). What we do: The HMSA aims to provide support and information to those affected by the Syndrome and to promote knowledge and understanding within the medical community and the public at large. We hope to assist sufferers to come to terms with the HMS and the distress that it can cause. The severity of the effects of HMS varies with the individual: some have few symptoms others are severely affected. HMS is an 'invisible illness' and because of this we can look well to the outside world but are often in severe pain. Moreover the nature of hypermobile joints combined with frail tissues means that we are prone to injury when performing simple everyday tasks. This opens us to skepticism, particularly by those in the medical profession who know little about HMS. The pain, stress and frustration can lead to depression: thus depression can often be mistaken as the cause of the illness, not a result of it. We work closely with those in the medical community with a special interest in HMS. Through our newsletters we aim to provide members with updates on the developments and issues within the medical community. As patients we need as much current and useful information as is available. In turn it is our aim to provide those in the medical community with information about living with HMS. We can provide valuable data for research just by working as group rather than as individuals. Working in a proactive and mutually beneficial relationship with the medical community, the HMSA acts as both a support group as well as a force for advocacy for those with HMS. Need More Information? If you would like further advice or information on either the HMSA or the Hypermobility Syndrome, please either write to us at: The Hypermobility Syndrome Association 12 Greenacres Hadleigh Benfleet Essex SS7 2JB enclosing a stamped self addressed envelope or use our feedback form. To become a member simply click here and complete the form. Our telephone number (available from 9.00 am to 1.00 pm Monday to Friday and the first Saturday of every month) is 0845 3454465. Or you could become a member of our online community here Want to help? The Hypermobility Syndrome Association is financed by donations and the contributions it receives from members and is staffed by volunteers. (Annual accounts are available on request from the above address). If you feel that you can contribute to the charity either by making a donation or by volunteering your time or skills then we would be delighted to hear from you. The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004. Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors. The information contained on this web site may not be published, broadcast or otherwise distributed without prior written authorization.

	The Hypermobility Syndrome Association is a charity registered in England and Wales (1011063) and in Scotland (SC037916) Contact \| Site Map \| Privacy \| Advisors \| Admin \| Website \| © HMSA 2008