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It’s Ehlers-Danlos awareness month! #EDSawarenessmonth

Posted By HMSA Social Media Coordinator, May 3, 2017

So today let’s look at hEDS.

hypermobile Ehlers-Danlos syndrome is:
– a genetic connective tissue disorder which affects each individual differently. The gene(s) haven’t been identified yet.
– generalised joint hypermobility (dislocations are common although not everybody with hEDS dislocates, joint instability, pain and fatigue)
– slightly stretchy or soft skin, which bruises easily.*
– a slightly increased risk of hernias and prolapses*
– some individuals will have ‘marfanoid habitus’ – a particular body type with features that include an armspan that is greater than one’s height, long fingers and thin wrists.

*these symptoms may cause problems, but are less severe than commonly seen in vEDS and cEDS – we’ll cover those in the next few days!

Managing hEDS is tricky. Being as strong as possible is essential – but trying to build strength when you are easily injured and get overwhelmingly fatigued simply isn’t easy! Getting it wrong can often set us back instead of helping, so it can take a fair bit of trial and error to find what works for the individual.

So please be patient and supportive towards anyone struggling to find their way to live well with hEDS.
For more information see our website: http://hypermobility.org/


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