Latest News

#MarfanMonday

Posted By HMSA Social Media Coordinator, September 1, 2017

Marfan Monday

I don’t know about you but August has been a busy month for me and September is set to be the same! This week in particular is jam packed for me, with a few hospital appointments and I’m heading down south to stay with family on Friday to attend some appointments in London.

Today though, my busy week kicked off with a powerchair demo at home! I’ve needed a new powerchair for a while and today I tried out one that might just be perfect for me. I’m excited to get something that will allow me to have a lot more freedom, my current chair has served me well but it’s just too basic now. With Autumn and Winter coming up I know it’s going to be more important than ever that I have a powerchiar that is comfortable and fits me well, as like many other’s, my pain is worse in the colder months. I’m preparing though! I’ve got my electric hot water bottle, electric blanket and heat pads ready for the cold weather.

What have you been up to this Summer?

– Shona (HMSA Marfan Ambassador)


Disclaimer
The information provided by the HMSA should not take the place of advice and guidance from your own health-care providers. Material in this site is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Articles were last reviewed by our Medical Advisors as being correct and up to date on 5th June 2004.

Please be aware that information posted on the discussion boards is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.