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The HMSA is 25!

Posted By FLICK MCLUCKIE, June 16, 2017

This year is the charity’s 25th Anniversary. The HMSA was originally created with the support of Professor Howard Bird, as a sister group to EDS UK. Other well known medical advisors assisted the original HMSA volunteers to set up a support system for people with what was then called ‘Hypermobility Syndrome’ or ‘Benign Joint Hypermobility Syndrome’.

Five years ago, after the work of the charity suddenly expanded, and at request of people who wanted access to our support groups, high quality evidenced based information, and our self-management programmes we opened the doors to everyone with a hypermobility related disorder, such as EDS (all sub-types), Marfan syndrome, Stickler syndrome, Osteogenesis Imperfecta and PXE. Although we predominantly work with the above conditions we would never turn away anyone with other conditions where mild hypermobility may be seen.

We will be celebrating our anniversary in Hampshire this weekend. Please see yesterday’s 25th anniversary e-news edition for more details, our social media, or this poster. We are also running a joint HMSA and EDS UK Residential Weekend at the end of September and perhaps it is a very poetic time for both charities to work together. More collaboration work with other patient support groups is currently being planned and we will let you all know as soon as events or projects are formalised.

One of the differences between the HMSA and other patient organisations is that we have for the last few years offered a professional membership. This allows us to advise, signpost or provide education days and information to professionals and service providers, helping to ensure that our members needs are being met to a high standard.
These are exciting times for the HMSA and plans for the next 25 years will surely see us grow from strength to strength.
So thank you to all of you who continue to support the charity and volunteer to help us provide the services we do.
Here’s to the next 25 years!


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