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The Hypermobility Syndrome’s Association Helpline (an overview) by Helpline volunteer, Steph. and HMSA Professional Team:)

Posted By Donna Wicks, December 6, 2017

The Hypermobility Syndrome’s Association helpline is run by trained volunteers, all of whom suffer from a hypermobility syndrome themselves. The aim of the helpline is to provide support to those suffering from any of the hypermobility syndromes, whether that is, Hypermobility Spectrum Disorder (HSD), any of the Ehlers Danlos Syndromes, Marfan Syndrome, Osteogenesis Imperfecta, Pseudoxanthoma or Stickler Syndrome, all are welcome under our umbrella!

The volunteers on the helpline provide a listening ear to those who call us, we will provide positive support and advice when appropriate. We get a wide variety of callers, from those wanting to talk about specific aspects of their condition that are affecting them, general advice on well-being and help in finding specialists that may be able to help them with their condition. We sometimes get calls from people who suspect that they might have a hypermobility syndrome and want advise about what to do. However, a lot of the callers are looking for somebody to listen to them, to provide a listening ear and to provide a bit of comfort.

We also get calls from professionals, including GPs or primary physicians. These calls are usually about finding services or other professionals who may be able to assist their patients. These calls are easily dealt with due to knowledge of our helpline volunteers.

Some GPs ask us to provide literature to them, so they can share it with their patient/s. Others just want to talk to one of the HMSA Professional Team and use us as a sounding board, whilst they work through the complex issues that their patient may be experiencing. These calls are increasing all the time and we are very pleased to hear from any professional who is attempting to identify and assist a patient with a hypermobility syndrome. We hope that due to the ‘Giving GPs the Tools’ campaign, these types of calls will increase.

The HMSA Helpline, is here for our 3Ps (patients/service users, professionals and providers of services). The volunteers in the helpline team are very dedicated and caring people who happily give up a few hours a week or a month to support those who need our help.

If you think you have the skills to assist on the Helpline or want to help in another way then please do get in touch. We are always recruiting volunteers and it doesn’t matter how many hours you can give us, you will still be an important part of our team.

If you want to support us by donating to the HMSA ‘Giving GPs the Tools’ campaign, you can do so by
Just Text HMSA13 to 70070 followed by the amount you wish to donate either 5 or 10.
Or you can donate on the campaign Virgin Giving page It doesn’t matter if its a small amount because every penny does matter.

Visit for 10% off shop products, excludes clothing, Really Useful Products and wheatbags, Type SALE-10% at checkout

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