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vEDS Awareness

Posted By HMSA Social Media Coordinator, May 8, 2017

It’s Ehlers-Danlos Awareness Month!

Here’s a shout out to all those living with vascular Ehlers-Danlos syndrome!

It is a connective tissue disorder caused by known genes, and symptoms include:
– thin, translucent skin that bruises easily.
– very fragile arteries, gut wall, and uterus. These may rupture which can be life threatening, and so need monitoring.
– a characteristic facial appearance with protruding eyes, thin nose and lips, sunken cheeks, and a small chin.
– joint hypermobility usually in the hands (can be elsewhere)

The level of bruising is much more severe, and the skin much more translucent in vEDS than in hEDS or cEDS.

It’s actually quite common for people with vEDS not to know they have it until something drastic (like an anuerysm or organ rupture) happens. Early diagnosis is really important as it can mean that lifestyle can be adapted to reduce risks, and monitoring can pick up issues and address them before they can become life-threatening.

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