Over the past few months, I’ve interacted with many different health care professionals – physiotherapists, rheumatologists,...

A letter to a ‘loved one’ by Kirsty Turner, on understanding a Hypermobility Syndrome, such as hEDS or HSD Dear Loved One, As I have...

The temperature is climbing here in the Northern hemisphere and for those that have PoTs in particular it means we will need to be a bit...

By Sophie Harvey During these strange times, routine has been vital for me, both for pacing purposes and for my sanity. It helps give me...

Thank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping...

‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...

My EDS Story – Zoe Lewis I have Ehlers-Danlos type 7. Arthrochalasia, there are believed to be around 40 confirmed cases in the world...

As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...

"After over 10 years suffering the excruciating pain and debilitating effects of bilateral plantar fascitis I was to finally meet a new...

Hypermobility Syndromes Awareness Week is upon us and we're receiving some wonderful answers to our #2020Hindsight question - "If you'd...

As a general rule, I don't refer to my disabling conditions (HSD, POTS etc) as being ill or being sick. Why - when they can make me feel...