Where are we at with the diagnostic terms hEDS, HSD, JHS and hypermobility?
Over the past few months, I’ve interacted with many different health care professionals – physiotherapists, rheumatologists,...
top of page
Search
3 min read
Explaining An HMS To Friends and Family
A letter to a ‘loved one’ by Kirsty Turner, on understanding a Hypermobility Syndrome, such as hEDS or HSD Dear Loved One, As I have...
1 min read
Keeping Cool For The Summer
The temperature is climbing here in the Northern hemisphere and for those that have PoTs in particular it means we will need to be a bit...
2 min read
How Do People Living With Hypermobility Syndromes Get Through Mundane Tasks?
By Sophie Harvey During these strange times, routine has been vital for me, both for pacing purposes and for my sanity. It helps give me...
1 min read
How the HMSA's Webinars Have Helped Me With Hypermobility Syndromes
Thank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping...
1 min read
Advice For Life With hEDS
‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...
10 min read
Rare Disease Day 2020, Zoe's story, Arthrochalasia
My EDS Story – Zoe Lewis I have Ehlers-Danlos type 7. Arthrochalasia, there are believed to be around 40 confirmed cases in the world...
4 min read
Osteogenesis imperfecta - More than just brittle bones!
As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...
3 min read
HMSAware - My One True Medic
"After over 10 years suffering the excruciating pain and debilitating effects of bilateral plantar fascitis I was to finally meet a new...
1 min read
HMSAware - Exercise, stay #HMSActive - Dawn Humberstone
Hypermobility Syndromes Awareness Week is upon us and we're receiving some wonderful answers to our #2020Hindsight question - "If you'd...
2 min read
Pacing, Illness and HSD
As a general rule, I don't refer to my disabling conditions (HSD, POTS etc) as being ill or being sick. Why - when they can make me feel...
bottom of page