A teenagers perspective on pain
As a 14-year-old girl who suffers with hypermobility, I have found living with pain quite difficult at times, but I have found many ways...
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5 min read
Dynamic fabric supports for more functional hypermobile joints
An overview of recent research on the use of dynamic orthosis in symptomatic hypermobility.
1 min read
Downloadable 'About hypermobility' info leaflet
A trifold leaflet giving an overview of hypermobility and how the Hypermobility Syndromes Association can help.
2 min read
What my pain feels like
Editors note: Anne, our Nottingham Local Group Leader suffered a bout of painsomnia recently, which led to this rather marvellous...
1 min read
Long Covid - New research and early findings
Two of the HMSA's Clinical Advisors, Philip Bull and Alan Hakim, in partnership with Long Covid advocate, Gez Medinger have conducted...
3 min read
6 Things I wish I’d known about exercise and hypermobility - a patient's perspective
I have a hypermobility syndrome (probably hypermobility Ehlers Danlos syndrome). The Hypermobility Syndromes Association’s (HMSA) topic...
2 min read
About my first rendezvous with Tai Chi
Andrea Hebig shares her experience of discovering Tai Chi to help manage her hypermobility syndrome.
2 min read
A volunteer's story
I recently went to a genetics appointment for my 7-month-old little boy. When he was having his new born check, the doctor started asking...
5 min read
A new screening tool – The Spider
By Simmonds JV1, 2, 3, Ellen Ewer1, 4, De Wandele Inge5, Kazkaz Hanadi2, 6, Ninis Nelly7, Rowe Peter8, Tang Eudora1, 6 Exciting news: An...
5 min read
How can Hypermobility Syndromes affect life insurance?
Thank you to Reassured who have written this sponsored blog post which we hope may be of interest. As a result of the COVID-19 pandemic,...
5 min read
Where are we at with the diagnostic terms hEDS, HSD, JHS and hypermobility?
Over the past few months, I’ve interacted with many different health care professionals – physiotherapists, rheumatologists,...
1 min read
Getting Physical When Fully Flopped
In 2019 our #HMSAware campaign focused on the challenges of staying active with a hypermobility syndrome, exercising enough to stay...
11 min read
Posture and Movement
Dr Bull developed an interest in the Alexander technique when in training as a rheumatologist in the 1980s. He has taken lessons, and has...
1 min read
Keeping Cool For The Summer
The temperature is climbing here in the Northern hemisphere and for those that have PoTs in particular it means we will need to be a bit...
2 min read
How Do People Living With Hypermobility Syndromes Get Through Mundane Tasks?
By Sophie Harvey During these strange times, routine has been vital for me, both for pacing purposes and for my sanity. It helps give me...
1 min read
How the HMSA's Webinars Have Helped Me With Hypermobility Syndromes
Thank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping...
1 min read
Advice For Life With hEDS
‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...
10 min read
Rare Disease Day 2020, Zoe's story, Arthrochalasia
My EDS Story – Zoe Lewis I have Ehlers-Danlos type 7. Arthrochalasia, there are believed to be around 40 confirmed cases in the world...
4 min read
Osteogenesis imperfecta - More than just brittle bones!
As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...
3 min read
HMSAware - My One True Medic
"After over 10 years suffering the excruciating pain and debilitating effects of bilateral plantar fascitis I was to finally meet a new...
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