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10 min read
Rare Disease Day 2020, Zoe's story, Arthrochalasia
My EDS Story – Zoe Lewis I have Ehlers-Danlos type 7. Arthrochalasia, there are believed to be around 40 confirmed cases in the world...
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4 min read
Osteogenesis imperfecta - More than just brittle bones!
As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...
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3 min read
HMSAware - My One True Medic
"After over 10 years suffering the excruciating pain and debilitating effects of bilateral plantar fascitis I was to finally meet a new...
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4 min read
Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree
The #BendyBasics arm of the 2016 #HMSAware campaign covered a number of areas, but this post, in particular, fits very nicely into this...
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2 min read
Pacing, Illness and HSD
As a general rule, I don't refer to my disabling conditions (HSD, POTS etc) as being ill or being sick. Why - when they can make me feel...
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