In 2019 our #HMSAware campaign focused on the challenges of staying active with a hypermobility syndrome, exercising enough to stay...

The temperature is climbing here in the Northern hemisphere and for those that have PoTs in particular it means we will need to be a bit...

May 2023. This page is no longer regularly updated, many of the resources to which it points have closed (UKHSA monitoring pages and the...

‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...

What are all these new conditions we keep hearing about, Ehlers-Danlos, hypermobility, classical - is our granddaughter not just double...

The #BendyBasics arm of the 2016 #HMSAware campaign covered a number of areas, but this post, in particular, fits very nicely into this...

As a general rule, I don't refer to my disabling conditions (HSD, POTS etc) as being ill or being sick. Why - when they can make me feel...