Posture and Movement
Dr Bull developed an interest in the Alexander technique when in training as a rheumatologist in the 1980s. He has taken lessons, and has...
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3 min read
Hypermobility Syndromes Association COVID-19 Collated Resources
May 2023. This page is no longer regularly updated, many of the resources to which it points have closed (UKHSA monitoring pages and the...
1 min read
How the HMSA's Webinars Have Helped Me With Hypermobility Syndromes
Thank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping...
4 min read
Osteogenesis imperfecta - More than just brittle bones!
As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...
3 min read
One step removed - a Grandparent’s view
What are all these new conditions we keep hearing about, Ehlers-Danlos, hypermobility, classical - is our granddaughter not just double...
5 min read
HMSAware - Loeys-Dietz and differential diagnosis
In medicine, differential diagnosis is the distinguishing of a particular disease or condition from others that present similar symptoms....
3 min read
HMSAware - My One True Medic
"After over 10 years suffering the excruciating pain and debilitating effects of bilateral plantar fascitis I was to finally meet a new...
4 min read
Marfan syndrome, EDS is not the only 'fruit' of the hypermobility family tree
The #BendyBasics arm of the 2016 #HMSAware campaign covered a number of areas, but this post, in particular, fits very nicely into this...
1 min read
HMSAware - Exercise, stay #HMSActive - Dawn Humberstone
Hypermobility Syndromes Awareness Week is upon us and we're receiving some wonderful answers to our #2020Hindsight question - "If you'd...
2 min read
Victory for Kids and Teens Social Media Volunteer!
You may have noticed the lack of posts from me again the past few weeks - but I was off fighting a better fight. Kids & teen related of...
2 min read
Pacing, Illness and HSD
As a general rule, I don't refer to my disabling conditions (HSD, POTS etc) as being ill or being sick. Why - when they can make me feel...
5 min read
My Mental Health 101 for World Mental Health Day - Kim Clayden
World Mental Health Day is a really big deal! The signs of stress and anxiety can be really hard to identify. What is even more difficult...
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