In 2019 our #HMSAware campaign focused on the challenges of staying active with a hypermobility syndrome, exercising enough to stay...

May 2023. This page is no longer regularly updated, many of the resources to which it points have closed (UKHSA monitoring pages and the...

By Sophie Harvey During these strange times, routine has been vital for me, both for pacing purposes and for my sanity. It helps give me...

‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...