Blog | The Hypermobility Syndromes Association

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A volunteer's story

I recently went to a genetics appointment for my 7-month-old little boy. When he was having his new born check, the doctor started asking...

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A new screening tool – The Spider

By Simmonds JV1, 2, 3, Ellen Ewer1, 4, De Wandele Inge5, Kazkaz Hanadi2, 6, Ninis Nelly7, Rowe Peter8, Tang Eudora1, 6 Exciting news: An...

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My HMSA story

In December 2008, my partner proposed to me, and I was absolutely over the moon. I started planning my dream wedding for that July, only...

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Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain

By Jenny LL Csecs1,2†, Valeria Iodice3,4†, Charlotte L Rae5, Alice Brooke2, Rebecca Simmons2, Lisa Quadt1, 2, Georgia K Savage1, 2...

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Working is Not your Worth by Sophie Harvey

Originally posted some years ago, this important blog fell off the website during a move. We have seen a number of people beating...

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HAPPY BRAIN CHEMICALS TO MAKE YOU FEEL GOOD!

HAPPY BRAIN CHEMICALS TO MAKE YOU FEEL GOOD! Your daily D.O.S.E The image below was designed by the lovely Kim, as a quick and easy...

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How can Hypermobility Syndromes affect life insurance?

Thank you to Reassured who have written this sponsored blog post which we hope may be of interest. As a result of the COVID-19 pandemic,...

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Hypermobile actress Olivia D'Lima nominated for best newcomer award at National Television Awards

Olivia D'Lima, best known for her role as Fenisha Khatri in the hit BBC series Casualty, has been nominated for the best newcomer...

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Where are we at with the diagnostic terms hEDS, HSD, JHS and hypermobility?

Over the past few months, I’ve interacted with many different health care professionals – physiotherapists, rheumatologists,...

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Getting Physical When Fully Flopped

In 2019 our #HMSAware campaign focused on the challenges of staying active with a hypermobility syndrome, exercising enough to stay...

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Posture and Movement

Dr Bull developed an interest in the Alexander technique when in training as a rheumatologist in the 1980s. He has taken lessons, and has...

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Explaining An HMS To Friends and Family

A letter to a ‘loved one’ by Kirsty Turner, on understanding a Hypermobility Syndrome, such as hEDS or HSD Dear Loved One, As I have...

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Carers Week 2020 Is Here

Many of our community are or have unpaid carers in their lives. 2020 has been a strange year for everyone, but with people...

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Keeping Cool For The Summer

The temperature is climbing here in the Northern hemisphere and for those that have PoTs in particular it means we will need to be a bit...

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Hypermobility Syndromes Association COVID-19 Collated Resources

May 2023. This page is no longer regularly updated, many of the resources to which it points have closed (UKHSA monitoring pages and the...

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How Do People Living With Hypermobility Syndromes Get Through Mundane Tasks?

By Sophie Harvey During these strange times, routine has been vital for me, both for pacing purposes and for my sanity. It helps give me...

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How the HMSA's Webinars Have Helped Me With Hypermobility Syndromes

Thank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping...

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Advice For Life With hEDS

‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...

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Rare Disease Day 2020, Zoe's story, Arthrochalasia

My EDS Story – Zoe Lewis I have Ehlers-Danlos type 7. Arthrochalasia, there are believed to be around 40 confirmed cases in the world...

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Osteogenesis imperfecta - More than just brittle bones!

As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...