Many of our community are or have unpaid carers in their lives. 2020 has been a strange year for everyone, but with people...

The temperature is climbing here in the Northern hemisphere and for those that have PoTs in particular it means we will need to be a bit...

May 2023. This page is no longer regularly updated, many of the resources to which it points have closed (UKHSA monitoring pages and the...

By Sophie Harvey During these strange times, routine has been vital for me, both for pacing purposes and for my sanity. It helps give me...

Thank you so much for this. I found it really useful, reminding me of some things I knew already, and teaching me new ways of helping...

‘Advice for life’ with hEDS by Karen Merryweather Enjoy your extra 'bendiness', but look after the injuries. Be a dolphin, sea-lion or...

My EDS Story – Zoe Lewis I have Ehlers-Danlos type 7. Arthrochalasia, there are believed to be around 40 confirmed cases in the world...

As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...

What are all these new conditions we keep hearing about, Ehlers-Danlos, hypermobility, classical - is our granddaughter not just double...

As with many rare conditions the medical name can be long and difficult to pronounce, Osteogenesis Imperfecta! It is more commonly known...

In medicine, differential diagnosis is the distinguishing of a particular disease or condition from others that present similar symptoms....

"After over 10 years suffering the excruciating pain and debilitating effects of bilateral plantar fascitis I was to finally meet a new...

The #BendyBasics arm of the 2016 #HMSAware campaign covered a number of areas, but this post, in particular, fits very nicely into this...

Hypermobility Syndromes Awareness Week is upon us and we're receiving some wonderful answers to our #2020Hindsight question - "If you'd...

You may have noticed the lack of posts from me again the past few weeks - but I was off fighting a better fight. Kids & teen related of...

As a general rule, I don't refer to my disabling conditions (HSD, POTS etc) as being ill or being sick. Why - when they can make me feel...

World Mental Health Day is a really big deal! The signs of stress and anxiety can be really hard to identify. What is even more difficult...