Parental quality of
life and social support
in EDS/HSD
RECRUITING
Study for parents/guardians of individuals with Ehlers-Danlos Syndrome (EDS)/Hypermobility Spectrum Disorder
(HSD) looking at their quality of life and
perceptions of the social support that they
receive.
What the study will involve:-Filling out an online questionnaire, which should take approximately 15-20 minutes. You will be asked questions surrounding your quality of life and the social support that you receive.
Requirements to take part: -Must be a parent/guardian of an individual (of any age) with Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorder-Must live with or be in close contact with the individual who has Ehlers-Danlos Syndrome/ Hypermobility Spectrum Disorder-Must NOT have a diagnosis of Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorder themselves or suspect that they may have it. -Must have a good ability to read and understand English.
This study was reviewed and given a favourable ethical opinion by the University of Surrey Ethics Committee. Ref: FHMS 22-23 274 EGA
For more information about the study or to participate: -Scan the QR code-Or click on the link button below
