The use of Dynamic Fabric Elastomeric Fabric Orthoses to support exercise and function in people with hypermobile Ehlers-Danlos Syndrome or Hypermobility Spectrum Disorder and shoulder symptoms: A survey.
Recruiting
As part of her PhD, Anna and her colleagues have recently launched a survey for individuals with symptomatic hypermobility who experience shoulder symptoms. We are specifically looking into the use of Dynamic Elastomeric Fabric Orthoses but participants do not have to have worn one. The title of the project is: The use of Dynamic Fabric Elastomeric Fabric Orthoses to support exercise and function in people with hypermobile Ehlers-Danlos Syndrome or Hypermobility Spectrum Disorder and shoulder symptoms: A survey.
This survey is relevant for all adults with hEDS or HSD who have shoulder problems, regardless of whether or not you have experience of using DEFO. For those that do not wear DEFO or do not know what they are, the manufacturer describes them as specialised garments of clothing made from stretch fabric that provide sensory feedback, compression, and support to enhance musculoskeletal alignment and function. If you have used DEFO, the survey will ask about your direct experience. If you have not used DEFO, the survey will instead ask you to imagine what the experience might be like. The survey is open to UK residents only.
Below is a description of the flyer:
The image is a flyer from Coventry University promoting a survey for people living with hypermobile Ehlers-Danlos Syndrome (hEDS), Hypermobility Spectrum Disorder (HSD), and shoulder symptoms.
The flyer highlights the potential benefits of Dynamic Elastomeric Fabric Orthoses (DEFO) for managing hypermobile shoulders during exercise and daily activities. The survey aims to understand individuals' perceptions of barriers and enablers to the use of DEFO, with the findings intended to inform intervention strategies.
Main Text:
The university is researching special orthotic clothing known as DEFO, which may help with hypermobile shoulders.
The survey seeks to gather information on people’s understanding of DEFO, its benefits, and drawbacks.
The survey is for UK residents over 18 who have hEDS/HSD and shoulder issues, even if they haven’t used DEFO before.
The survey can be accessed via a QR code.
There's also an image of a person holding their shoulder, with a highlighted area indicating pain or discomfort.
Feel like taking part in the survey?
